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Who Gets The Grants For Chronic Lyme Disease?

Who Gets The Grants For Chronic Lyme Disease?

For those of us who are eagerly waiting to see research breakthroughs that have immediate effect on the incredibly painful and medical “no-man’s-land” of chronic Lyme Disease, it is discouraging to see one of the most successful not-for-profit advocacy groups, “Time for Lyme” dole out $25,000 to better understand the ticks digestion system.

Time for Lyme, Inc. a non-profit organization dedicated to research and education about Lyme disease, has been very influential in the development of America’s first Center for Chronic Lyme Disease at Columbia University’s Medical Center, has just recently announced that they have awarded a $25,000 grant to Dr. Robert E. Thach, Professor of Biology at Washington University in St. Louis for his work on vertebrate reservoirs for tick-borne diseases in the central United States.

According to Dr. Thach, “Future development and implementation of strategies to control tick-borne diseases depend on understanding how these disease-producing organisms that ticks transmit are maintained in the environment. Through novel analysis of nymphal tick gut blood, sources of the tick’s previous blood meals can be identified. In so doing, primary and secondary reservoirs can be determined. Discovering the carriers of the infected ticks will eventually help design methods to reduce human exposure to them and consequently, tick-borne diseases.”

“We cannot omit prevention from our equation to solving the problem of tick-borne diseases”, says Connecticut-based neurologist Harriet Kotsoris, M.D., medical director of Time for Lyme. “After all, if we reduce disease exposure, the burden to diagnose and treat will be substantially reduced,” Dr. Kotsoris adds.

Meanwhile, although the suffering victims of the disease acknowledge the importance of such research, it appears to be far more important to develop a reliable test for the disease and/or a cure or vaccine.

It makes one wonder who is making the decisions on determines the most important research projects to help halt the spread of Lyme disease and cure those who are already disabled.

What do you think?

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8 Responses to “Who Gets The Grants For Chronic Lyme Disease?”

  1. 1
    LindaNo Gravatar (3 comments):

    Dear Jenna’s Lyme Blog
     
    My daughter at 14 was sent home with lymes disease (misdiagnosed ). It wasn’t until almost 9 months later when her right knee was swollen did they test, find and orally treat my daughter for lymes disease. We were told she would be fine. During summer and through 9th grade she complained of headaches and fatigue. Her 10th grade was a complete disaster. she missed months of school. After a month of  IV treatment at home, the headaches subsided but the fatigue still remains. Unfortunately, we had no choice but to pull her out of a beautiful private catholic high school. It became apparent to us that she could not function normally with just 8 hrs of sleep. We saw no point in her redoing another dismal year being only physically present and the rest asleep. I had hoped to find a local high school that had afternoon sessions but could find none. Home instruction by the board of ed was no longer a choice since it took them more than 2month just to scrounge up a spanish teacher during my daughter’s home IV treatment. I have found some hope that she may take online high school classes. They are expensive and I am worried about, how good they are and if my daughter can get into a good college with that type of diploma. Can you please tell me if there are any good online high schools for the state of ny? I only found a few such as, George Washington University online high school and the International academy . They both work with a k-12 program. Since the state of ny has no public high schools on line, are there any grants or organizations that can help with the expensive online tuition of 7-10 thousand dollars a year? Your help would be appreciated. Getting a GED is the LAST thing my 16 yr daughter wants as her only option.  We believe she has the right to a higher education. Thank you for taking your time in reading my e-mail.
    Linda of queens ny 

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