Who Believes in Chronic Lyme Disease?
Imagine facing your fifth year of intense pain, swollen joints, headaches, seizures, high temperatures drenching sweats, multiple hospital visits…how can this be “made-up”?
It is hard to understand this hellish nightmare ourselves without the skeptical doctors who treat us as though our symptoms have all been generated by the brain.
I can’t conceive how anyone that knew me BL (before Lyme) could think that mypain and fatigue are a choice somehow.
Most of us who are stricken with Lyme lose vibrant and healthy lives to spend months and years in our beds. Imagine the neighbor across the street who tells the other neighbor next door emphatically, “…well you know he’s faking it. I just read that there is no such thing as Lyme disease.”
The distinction between Lyme disease and chronic Lyme disease is completely lost amongst the uninformed, and most people believe that media outlets are the ultimate harbingers of truth. I thought when famous people started getting sick that the truth would finally break free - but no, actors, politicians, and most others who are famous keep it quiet lest it hurts their career.
Truth - the word itself means different things to different people. Unfortunately, when a celebrated medical expert determines a medical “truth”, it can take decades of mounting evidence to disprove that “truth”.
We have to cling to what we know is true and wait patiently for medical science to deliver the answers - and they will - we must have hope (and support the courageous medical doctors who have to fight to treat their patients in court.)
So when your neighbor asks you whats wrong - trust me, it is much easier to say you have an immune system disorder and avoid the skepticism. Because if you really do have chronic Lyme, you also have an immune system disorder.
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