Tick Talk Ireland’s Fantastic Blog
http://ticktalkireland.wordpress.com/
Created by a victim of chronic Lyme who continues to suffer, and was told for years and years (until just recently)that there is no Lyme disease in Ireland! Their stated mission: “Encouraging awareness, prevention & treatment of Lyme Disease (Borreliosis) in Ireland.”
Well, you will see that they are doing a wonderful job at accomplishing their mission and much, much more.
They needed to move their blog to Facebook so that more people could participate, and it has become a wonderful model of “all things Lyme.”
For instance, if you are feeling particularly bereft and alone, look at Celebrities with Lyme and you will see that ticks don’t check social status before latching on for a meal.
Or if you are desperate for humor – which I think we all are from time to time, take a look at Joanne’s Garden. I love to garden and have not yet done more than pull a weed or two so Joanne is WAY ahead of me!
To sum up, those of us in America with chronic Lyme disease have been beating our heads against the wall while trying to get the larger medical community to take us seriously – and that is with almost 50 years of evidence on our side that Lyme disease in fact exists.
I find it so very inspirational to see how organized and determined the Irish are in the face of denial at every level. Can you imagine having to take a plane to find a LLD??
Finally, you may have read this extraordinary document: “Articles relating to persistence of infection & seronegativity: Authored in some cases by IDSA guideline authors who claim there is no evidence of chronic or seroneg. despite their own previous studies.” however, I have not. So I wanted to make sure you have the link.
By the way, don’t try to read when you are tired – wait until your fog is thin and your head relatively clear. The information is truly amazing!
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August 4th, 2010 at 7:53 pm
[...] This post was mentioned on Twitter by Lyme Disease and Alisyn Gayle, Jenna Smith. Jenna Smith said: Tick Talk Ireland's Fantastic Blog via Jenna's Lyme Blog – If you haven't seen it, now is the time you … http://tinyurl.com/2vpzrel [...]
August 5th, 2010 at 12:46 pm
Hi Jenna
I follow your blog and was very surprised to hear your mention of my Joanne’s cottage garden blog. So many thanks for the mention. Although I am still enjoying my garden and it is probably even tidier than last year I have been tardy in blogging about it. Since starting my Looking at Lyme blog http://lookingatlyme.blogspot.com/ a link also from my garden blog, I find that lyme advocacy and blogging seem to take up much of my time. However it is paying off. It has proved a useful resource to find information and the repeated use of my symptoms and diagnosis ensure that it is picked up in Google alerts and viewed by people who would not have considered Lyme as a differential diagnosis. I have already been contacted by several people who have then gone on to getting a lyme disease diagnosis.
So it was my way of raising awareness especially after the frustration of not being able to get our National papers to take an interest in our plight.
Little by little we collectively are making a difference, living in Guildford Surrey UK I now know of 23 people in my locality with Chronic Lyme Disease we have our own small support group and at least 4 local surgeries are willing to treat chronic Lyme Disease patients on long term antibiotics.
The London ILADS Conference was an amazing event, I was honored to be asked to help out and was able to listen to some of the presentations.When the DVD is released soon I will make sure there is a copy to each of the local surgeries dealing with chronic lyme Patients.
We are not so well placed for LLMD’s but at least we have some unlike my friend in Canada who now travells to USA for her treatment.
With the power of the internet word is spreading and one day the ground swell will be enough to overcome the denial created by such a small handfull of deceitful doctors who should hang their heads in disgrace.
August 10th, 2010 at 8:50 am
For daily up-to-date information of Lyme Disease research, check out this Twitter List: https://twitter.com/IDonatePlasma/biotechnology-insights
There are a number of research organizations attempting to better understand Lyme disease as well as to develop better diagnostic test kits. On the diagnostics side, biotechnology companies like SeraCare Life Sciences and BioSpecialties Corporation run a number of diagnostics research studies for people diagnosed with Lyme Disease, paying participants $400+ to donate blood samples which are used to develop Lyme Disease diagnostics test kits (see: http://www.idonateplasma.com.) On the research side, Columbia University, and the Lyme Disease Research Foundation of Maryland are researching the proteomics, diagnostics, and epidemiology of Lyme Disease. On the clinical trial side, the National Institute of Health’ sponsor a number of clinical trials.
December 27th, 2011 at 9:02 am
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