Jenna’s Lyme Blog

Jenna’s Lyme Blog

News and resources for neurological Lyme disease and co-infections.

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Posts tagged IDSA Treatment Guidelines

IDSA Creates Black Thursday For Those Suffering With Chronic Lyme Disease

I will go on the record once more to say that it will be scientific researchers who will unlock the mystery of chronic Lyme disease (and in fact, if any of the IDSA panel had given even a cursory glance at the significant findings with respect to DNA/Lyme discoveries there would have to be some kind of change to the IDSA Guidelines.) I think it is appropriate to add the additional caveat: Politicians will become involved whether they want to or not.

Who Can We Trust?

Unfortunately for those of us with chronic Lyme disease; all of our symptoms, the intense unbearable pain and the clear evidence of disease – the IDSA does not acknowledge the existence of chronic Lyme disease. The IDSA guidelines are clearly no longer appropriate for handling Lyme disease due to the mounting evidence of the morphic and antibiotic-resistant disease. Well, it took the medical community a long time to figure out Lyme’s cousin, syphilis, too.

Letter Regarding Appointment of Committee to Review IDSA Lyme Treatment Guidelines

Selecting medical professionals from IDSA who don’t deal with Lyme, will put pressure on them to consult with the very people who wrote the first and second guidelines, and have shown to be self-serving medical practitioners who want a close relationship with pharmaceutical companies, insurance companies and peers, and who routinely categorize people like me (who lived a full and active life until being stricken with this horrific disease) “crazy”, “making up symptoms”, “hypochondriac”…OR worse yet, misdiagnosing Lyme, which has a known cause, for Fibromyalgia or Chronic Fatigue which have no known cure.