Scientific Evidence for Chronic Lyme Disease
Dr. Daniel Cameron is a highly respected expert in the Lyme disease field, also, an actively practicing medical doctor in Mt. Kisco New York, as well as the author of over thirty scientific papers on Lyme disease. Additionally, Dr. Cameron is the past President of ILADS (International Lyme and Associated Diseases) from October 2007 to October 2009, and on the front line; raising money for more research, securing financing, medical and political support as well as test subjects who are eager to join the data collection today, but also, finding patients who were treated in the past in a certain way and following their progress or treatment failure, and then putting the information together in such a way that even Dr. Steere will have a tough time refuting his meticulous research.
On June 18, 2010, Dr. Cameron released a scientific paper that is sending shock waves through the medical community for the rigorous standard of testing and reporting, with explosive conclusions which at the very least will demand further testing, especially when you begin to evaluate medical records showing the terrible suffering of children that could have been avoided with more proactive and serious treatment at the initial exposure to Lyme infection.
The report shows far greater suffering caused by delayed treatment, than would otherwise be the case, especially with neurological symptoms and arthritic symptoms and pain. The results demand further investigation, in spite of the fact that the numbers of subjects cited in Dr. Cameron’s study are nothing to be sneezed at.
Considering the embarrassing lack of research thus far with respect to such an overwhelming and terrifying epidemic, along side the enormous political and medical debate that is bankrupting thousands and turning whole families out of their homes - it is about time that more serious research be prioritized to stop the fractious and damaging posturing in favor of saving lives.
There are spiteful, mean-spirited people who will respond that Lyme disease does not cause death, but that death is caused by the hotly debated long-term antibiotic treatment and occasional flukes. A spokesman from the IDSA (Infectious Disease Society of America) describes chronic Lyme disease as “the aches and pains of daily living.” Certainly not a life threatening disease. But those of us who have chronic Lyme disease already know how fragile our hold on life becomes.
Chronic Lyme disease takes lives even when there is a breathing shell left in place of the vibrantly active “pre-Lyme” person. If life is defined by the heart beating perhaps there are many more with Lyme who suffer silently. But I contend that those of us with bad cases of chronic Lyme are the “un-dead” – the “Lyme ghosts” living in agonizing pain – far, far beyond the aches and pains of daily living – unable to contribute to our families, friends, communities …in the meaningful way we once did.
And for children, who have yet to taste the pleasures of vibrant life – they don’t understand what they have lost. So it is up to the adults to protect these victims and bring them back to health (God Bless Dr. Jones).
I think it is safe to say that Dr. Cameron is leading the way towards a new understanding od chronic Lyme disease, which is quite a coup when the entire IDSA is on record as not believing in the existence of chronic Lyme disease!
To read more about Dr. Cameron go to http://www.lymeproject.com/index.html.
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August 4th, 2010 at 11:54 pm
I found Dr. Cameron to be quite the opposite of what you wrote. I went to see him in his office in Mt. Kisko, and he was very condescending, rude, and insulting. After performing the basic Western Blot test, he decided that I did not have Lyme. I had to provide him with a test from a private laboratory that showed that I had 6 markers for Lyme (only 2 were required for diagnosis), before he agreed to treat me. His office then began working on getting me the antibiotic infusions, and said that I could get them in-office, but suggested that I find a place closer to home such as a hospital that would take his orders especially since he does not take my insurance, and would therefore cost me AT LEAST $2000 PER WEEK to do it there!! A few weeks later, he did a complete about face and refused to treat me at all, telling me to go see other specialists and then come back to him with what I have found out, which he said would likely be nothing at all. As a person with chronic Lyme, I do not have the strength to keep going from doctor to doctor taking more and more tests, to prove what I already have proven through the Lyme test done by the private laboratory. Dr. Cameron was anything but a help, he was a giant disappointment. He raised my hopes of becoming well again, and then crashed them down, behaving like every other incompetent, uncaring Lyme illiterate doctor! It seems as though he is all about the money, and all of the attention he is receiving has gone to his head.
October 17th, 2010 at 12:50 am
Please if anyone else has had similar negative experiences with him. My teen son has lyme after repeated negative tests by GPs, and even after seeing supposed lyme doctors. He is losing memory concentration, has muscle aches for months. I don’t want to waste my time or his health… please help ASAP – urgent>>>>>>
October 17th, 2010 at 11:15 am
Karen -
LDA has a great doctor referral site to help people find good Lyme doctors, your state forum would have some ideas too. It is so important you find someone you can trust!
Blessings,
Jenna
August 18th, 2011 at 11:11 pm
I found Doctor Cameron to be a wonderful doctor! My family drove me 3.5 hours, each way, to be seen by him…and for those of you who have chronic lyme you know this is a noble feet! In the midst of seeing so many doctors, from some who don’t even think there is such a thing as chronic lyme disease, to others that just don’t know enough about lyme disease to help, he was a breath of fresh air. He understood every lyme symptom, from the perspective of the patient. He knew how symptoms can change daily and the hell you are going through. When suffering with a chronic illness that only those affected by it seem to understand, it can be very isolating and lonely, but Dr. Cameron eases that. It sickens me to think of those doctors who say these lyme literate doctors are just trying to take advantage of patients; that is the last thing Cameron does. He just wants his patients to get better and would happily work alongside other doctors you may be seeing. I only wish I lived closer to his office so that I could see his compassionate manner more frequently.
November 9th, 2011 at 9:26 am
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