Comments on: Hang In There Dr. Jones! http://www.lymediseaseresource.com/wordpress/hang-in-there-dr-jones/ News and resources for neurological Lyme disease and co-infections. Mon, 15 Mar 2010 02:45:15 +0000 http://wordpress.org/?v=2.7.1 hourly 1 By: amein http://www.lymediseaseresource.com/wordpress/hang-in-there-dr-jones/comment-page-1/#comment-1239 amein Wed, 16 Dec 2009 13:54:08 +0000 http://www.lymediseaseresource.com/wordpress/?p=994#comment-1239 What Dr. Jones has to go thru to treat children is a sad statement of our times. Dr. Jones is a noble person who is putting his neck on the line to treat children with Lyme disease. Tears come to my eyes when I think of what he has to endure. I am trying to find information on the court dcision on Dr. Jones' case... it's supposed to be in December... I've created a first draft website LymeAwarenessAdvocates.com with the hopes to increease awareness about the disease. regards amein What Dr. Jones has to go thru to treat children is a sad statement of our times. Dr. Jones is a noble person who is putting his neck on the line to treat children with Lyme disease. Tears come to my eyes when I think of what he has to endure.

I am trying to find information on the court dcision on Dr. Jones’ case… it’s supposed to be in December…

I’ve created a first draft website LymeAwarenessAdvocates.com with the hopes to increease awareness about the disease.

regards
amein

]]> By: thyromine http://www.lymediseaseresource.com/wordpress/hang-in-there-dr-jones/comment-page-1/#comment-859 thyromine Wed, 02 Sep 2009 08:20:19 +0000 http://www.lymediseaseresource.com/wordpress/?p=994#comment-859 I am also not familier with Dr. Jones but after reading your post I believe that its really hard to find such Doctor who desires to treat Lyme patients. Proper justice should be done that i believe. I am also not familier with Dr. Jones but after reading your post I believe that its really hard to find such Doctor who desires to treat Lyme patients. Proper justice should be done that i believe.

]]> By: Catherine S. Clark http://www.lymediseaseresource.com/wordpress/hang-in-there-dr-jones/comment-page-1/#comment-685 Catherine S. Clark Sun, 21 Jun 2009 04:26:27 +0000 http://www.lymediseaseresource.com/wordpress/?p=994#comment-685 Jenna I am not familiar with Dr. Jones of CT., but after reading your story it's a pity at how he's being treated. It's so damn hard to find ANY doctor willing to treat Lyme Patients at all. So when any of them is punished in any way, it's a loss for all of us who are stricken with Lyme. Especially the children. Who will be their voice? They can't write blogs and speak for themselves. The whole medical establishment and their connection with Lyme Disease has been screwed up by the Insurance companies from the very beginning. It's been no secret that doctors were warned NOT to treat people that they thought might be positive for Lyme Disease. That is why I went twenty years with NO treatment for my Lyme Disease. I've now had it for twenty two years. You can't even imagine the pain levels I now have in my joints, bones, muscles, head, eyes....oh God, I could go one forever. But what is really bad is my brain. I infused Rocephin for 5 months, 90 infusions, but it did little to help all that is now wrong with my brain. I must have dropped 90 IQ points. I can no longer read, I now have very low vision, my drivers license has been taken away, I've lost all cognitive skills....and that's just the tip of the iceberg. But....all along the great experts were saying "You don't have Lyme disease". It took a Brain Spect Scan on the twentieth year to finally get a positive test for neuro borreleosis (not sure if spelled correctly - lost that ability too). It seems the lack of blood supply in my brain went on for so many years that it has causes irrepairable damage to my brain and eyes. I have also developed other diseases and syndromes which put me in the hospital a few times a year. I am pissed off and bitter at how I was brushed aside and blown off by just about every type of specialist you can imagine. I found infectious disease doctors and rheumatologists to be the most degrading to me. Oh, yeah, this doesn't help. I am also fat. I got fat over the years. I wasn't fat until after the onset of Lyme. When they see a fat chick sitting in front of them whining about a sore eye a headache and then sore knees, all they hear is "sore knees". Then you get the pat on the shoulder and the proverbial "well, if you just lose a little weight.....". Oh yeah, I also have Graves Disease. It's a thyroid disease. I take synthetic thyroid meds, but because of my chronic gastritis, I don't absorb all my meds, so its hard to keep my thyroid levels normal, so I am hypothyroid most of the time. Another side affect of Lyme. But I cannot get two doctors to connect the dots. I also have Perncious Anemia which requires blood transfusions. Oh, it's been a fun 22 years. So Conneticut is lucky to have a good doctor like Dr. Jones and they want to punish him. Here in PA, I've had nothing but a long string of disappointments and yet none of my doctors have been punished. Where's the justice? Jenna

I am not familiar with Dr. Jones of CT., but after reading your story it’s a pity at how he’s being treated. It’s so damn hard to find ANY doctor willing to treat Lyme Patients at all. So when any of them is punished in any way, it’s a loss for all of us who are stricken with Lyme. Especially the children. Who will be their voice? They can’t write blogs and speak for themselves. The whole medical establishment and their connection with Lyme Disease has been screwed up by the Insurance companies from the very beginning.

It’s been no secret that doctors were warned NOT to treat people that they thought might be positive for Lyme Disease. That is why I went twenty years with NO treatment for my Lyme Disease. I’ve now had it for twenty two years. You can’t even imagine the pain levels I now have in my joints, bones, muscles, head, eyes….oh God, I could go one forever. But what is really bad is my brain. I infused Rocephin for 5 months, 90 infusions, but it did little to help all that is now wrong with my brain. I must have dropped 90 IQ points. I can no longer read, I now have very low vision, my drivers license has been taken away, I’ve lost all cognitive skills….and that’s just the tip of the iceberg. But….all along the great experts were saying “You don’t have Lyme disease”. It took a Brain Spect Scan on the twentieth year to finally get a positive test for neuro borreleosis (not sure if spelled correctly - lost that ability too). It seems the lack of blood supply in my brain went on for so many years that it has causes irrepairable damage to my brain and eyes. I have also developed other diseases and syndromes which put me in the hospital a few times a year.

I am pissed off and bitter at how I was brushed aside and blown off by just about every type of specialist you can imagine. I found infectious disease doctors and rheumatologists to be the most degrading to me. Oh, yeah, this doesn’t help. I am also fat. I got fat over the years. I wasn’t fat until after the onset of Lyme. When they see a fat chick sitting in front of them whining about a sore eye a headache and then sore knees, all they hear is “sore knees”. Then you get the pat on the shoulder and the proverbial “well, if you just lose a little weight…..”. Oh yeah, I also have Graves Disease. It’s a thyroid disease. I take synthetic thyroid meds, but because of my chronic gastritis, I don’t absorb all my meds, so its hard to keep my thyroid levels normal, so I am hypothyroid most of the time. Another side affect of Lyme. But I cannot get two doctors to connect the dots. I also have Perncious Anemia which requires blood transfusions. Oh, it’s been a fun 22 years.

So Conneticut is lucky to have a good doctor like Dr. Jones and they want to punish him. Here in PA, I’ve had nothing but a long string of disappointments and yet none of my doctors have been punished. Where’s the justice?

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