Hang In There Dr. Jones!
Then I think about Dr. Ray Jones.
And then I think about the thousands (over 9,000) of children he has treated and cured over the years…probably there are some who he hasn’t been able to cure, but the man’s courage truly humbles me. He is such an inspiration, wouldn’t you agree? I am overwhelmed by the courage he exhibits each day that he continues his practice under the constant threat of legal bills and peer hostility - he just focuses on his oath as a doctor with amazing compassion for his patients.
For those readers who aren’t aware of this particular Lyme related crisis, there have been over two years of proceedings against Dr. Jones before the Connecticut Medical Examining Board relating to charges filed by the Department of Public Health in November 2006. According to information posted on the Department’s website, the Department alleges that in August 2004, Jones ordered blood work for two children, ages 3 and 6, without taking a patient history or conducting a physical examination.
He also allegedly ordered blood work for a child who had no symptoms of any illness, and ordered a urine test that is known to be unreliable.
With respect to a third patient, age 4, the allegations are that Jones diagnosed Lyme Disease and another illness and prescribed antibiotics without making a differential diagnosis, examining the patient or taking a medical history.
As to a fourth patient who was an infant when first seen by Dr. Jones, the allegations are that Dr. Jones diagnosed “gestational Lyme Disease” (Lyme Disease allegedly transmitted in utero while the mother was pregnant with the child) without performing a differential diagnosis.As to the fourth child, the allegations are that while the child was in the 1st grade, Jones wrote and repeatedly called the school principal on numerous occasions to excuse absences and reported strep infections that were not documented in the patient’s medical chart and not supported by strep culture results.
According to the statement of charges, so many absences were excused by Dr. Jones that were not documented as legitimate medical illnesses that the student had to be retained in 1st grade, and Dr. Jones reported that the Lyme Disease had resulted in the student having a hearing loss even though the student had normal audiological examinations.
If proven, these charges could result in additional disciplinary action against Dr. Jones by the Board up to and including revocation of his license to practice medicine in the State of Connecticut.
Hoards of supporters have donated generously to his legal defense fund (for information on donations click here on Dr. Jones Legal Defense Fund), and continue to do so.
Unfortunately, those of us suffering with chronic Lyme disease are flat broke trying to figure out a way to buy the critical products for our unique protocol, but we can pray for him, and we can spread the word too.
Anyways, the next time I am tempted to feel sorry for myself I will think of Dr. Jones, and I will think of the children who are suffering in a deeply disturbing manner - without the thick walls of emotional protection that we build over the years of our lives.
For related blog posts:
My Left Nutmeg:: CT Pediatrician to be Sanctioned for Lyme Disease … - Because if Dr. Jones is forced out of his practice, there will be no pediatricians left who are willing to take on the difficult cases of children with chronic Lyme disease. He is the only one that remains. …
UNDER OUR SKIN Blog » Feeling the pressure: An update on Dr … - Feeling the pressure of the 37% increase in Lyme disease cases from 2006 to 2007, Dr. Jones’s office is averaging three new patient calls a day, in addition to training new Lyme-literate pediatricians through the Turn the Corner Physicians …. As a patient who suffers from chronic Lyme as well as a coinfection Bartonella, I am so incredibly grateful to this film and to LLMD’s like Dr. Jones. A modern day Hero admist the ignorant and selfcentered Dr.’s opposed to treating …
Dr. Jones Legal Battle For Lyme Kids, Pediatrician | Lyme Disease … - Dr. Jones fights state medical boards for the right to treat children with Lyme disease. … We wish we have 8000 kind, loving, knowledgeable CHRONIC LYME LITERATE MDS, LLMDS, like Dr. Jones! From what I’ve read tonight on http://www. lymenet.org; many donations have been sent but they feel are under the necessary $90000 DUE TODAY! *******************. Bryan, I hope you notified all your lyme friends, co-workers, family, etc. and DONATING WHATEVER THEY CAN FOR DR. …
LymeBlog - The Trial of Dr. Charles Ray Jones - Jones said that the children who end up as his patients are often children with persisting and more serious symptoms of Lyme. In fact, he said, 80 percent of his cases are children with a chronic form of the disease. …
Dr. Jones Appeals Ruling - Partial Stay Issued - This alleged bias is the subject of a series of affidavits filed by family members in State Superior Court claiming to have sought treatment for chronic Lyme Disease with this physician, who allegedly made a series of derogatory …
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Thanks for visiting again - Please comment on the posts you read - everyone is interested in what you have to say.
June 20th, 2009 at 11:26 pm
Jenna
I am not familiar with Dr. Jones of CT., but after reading your story it’s a pity at how he’s being treated. It’s so damn hard to find ANY doctor willing to treat Lyme Patients at all. So when any of them is punished in any way, it’s a loss for all of us who are stricken with Lyme. Especially the children. Who will be their voice? They can’t write blogs and speak for themselves. The whole medical establishment and their connection with Lyme Disease has been screwed up by the Insurance companies from the very beginning.
It’s been no secret that doctors were warned NOT to treat people that they thought might be positive for Lyme Disease. That is why I went twenty years with NO treatment for my Lyme Disease. I’ve now had it for twenty two years. You can’t even imagine the pain levels I now have in my joints, bones, muscles, head, eyes….oh God, I could go one forever. But what is really bad is my brain. I infused Rocephin for 5 months, 90 infusions, but it did little to help all that is now wrong with my brain. I must have dropped 90 IQ points. I can no longer read, I now have very low vision, my drivers license has been taken away, I’ve lost all cognitive skills….and that’s just the tip of the iceberg. But….all along the great experts were saying “You don’t have Lyme disease”. It took a Brain Spect Scan on the twentieth year to finally get a positive test for neuro borreleosis (not sure if spelled correctly - lost that ability too). It seems the lack of blood supply in my brain went on for so many years that it has causes irrepairable damage to my brain and eyes. I have also developed other diseases and syndromes which put me in the hospital a few times a year.
I am pissed off and bitter at how I was brushed aside and blown off by just about every type of specialist you can imagine. I found infectious disease doctors and rheumatologists to be the most degrading to me. Oh, yeah, this doesn’t help. I am also fat. I got fat over the years. I wasn’t fat until after the onset of Lyme. When they see a fat chick sitting in front of them whining about a sore eye a headache and then sore knees, all they hear is “sore knees”. Then you get the pat on the shoulder and the proverbial “well, if you just lose a little weight…..”. Oh yeah, I also have Graves Disease. It’s a thyroid disease. I take synthetic thyroid meds, but because of my chronic gastritis, I don’t absorb all my meds, so its hard to keep my thyroid levels normal, so I am hypothyroid most of the time. Another side affect of Lyme. But I cannot get two doctors to connect the dots. I also have Perncious Anemia which requires blood transfusions. Oh, it’s been a fun 22 years.
So Conneticut is lucky to have a good doctor like Dr. Jones and they want to punish him. Here in PA, I’ve had nothing but a long string of disappointments and yet none of my doctors have been punished. Where’s the justice?
September 2nd, 2009 at 3:20 am
I am also not familier with Dr. Jones but after reading your post I believe that its really hard to find such Doctor who desires to treat Lyme patients. Proper justice should be done that i believe.
December 16th, 2009 at 8:54 am
What Dr. Jones has to go thru to treat children is a sad statement of our times. Dr. Jones is a noble person who is putting his neck on the line to treat children with Lyme disease. Tears come to my eyes when I think of what he has to endure.
I am trying to find information on the court dcision on Dr. Jones’ case… it’s supposed to be in December…
I’ve created a first draft website LymeAwarenessAdvocates.com with the hopes to increease awareness about the disease.
regards
amein