Comments on: New National Lyme Disease Registry!

By: Dr. Mercola interviews Dr. Klinghardt about Chronic Lyme Disease | About Lyme Disease

Sat, 24 Sep 2011 21:33:49 +0000

[...] New National Lyme Disease Registry! [...]

By: snsd hoot

snsd hoot — Sat, 18 Dec 2010 05:05:47 +0000

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By: Jenna Smith

Jenna Smith — Tue, 22 Jun 2010 19:27:58 +0000

Hi Josh -

There is no definitive test for Lyme disease which is one of the reasons for all the craziness in the Lyme debate. More sent privately.

Blessings,

Jenna

By: Josh Lentz

Josh Lentz — Mon, 14 Jun 2010 17:04:17 +0000

I have been bitten by ticks in the past and in my childhood (now 29) and thought nothing of it. Upon finding this I remembered that I had a tick attached to my skin about a month ago or so. About 5 ears ago I was diagnosed with psoriasis and dermatitis. I just recently started experiencing severe pains in my joints (above the everyday pains I usually have) last week and was forced to look for a different job. I saw my doctor last week and it sounds like they are trying to tell me its pinched nerves and a vitamin d deficiency.

I am writing to ask if a lyme disease test can be performed by my regular doctor and is that the best way to go about finding out if I have Lyme or not. I do not have insurance and would like the least expensive route to finding this out.

Thank you in advance for your help and support.

Josh Lentz

Grand Rapids, Michigan
616-890-4698

By: Jenna Smith

Jenna Smith — Tue, 30 Mar 2010 12:10:03 +0000

Sorry about that!

Go to for the National Lyme Disease Registry

Blessings!

Jenna

By: Sonyafightslyme

Sonyafightslyme — Mon, 29 Mar 2010 20:50:43 +0000

Where is this registry? The link does not work!

By: Jenna Smith

Jenna Smith — Wed, 11 Nov 2009 14:58:01 +0000

Marre – Most of us have had disability denied, but don’t give up! If you have had Lyme since 1990, I am willing to bet you have significant clinical depression. Try to find a really good clinical therapist or psychiatrist and approach your disability from that angle. I hate to say this, because in my case I actually did get disability after my appeal with Lyme as my condition, however, my clinical therapist said that he deals with SSD frequently and that if I ever had a problem again, that he could help me. Evidently, the government is more familiar with depression causing disability.

Either way, I recommend that you keep trying. Call your US Senator to help facilitate your case, and finally, I would advise that you approach the process in as calm a manner as possible. Lyme rage is a very real part of what we struggle with, and I know you can’t control when these symptoms occur, but perhaps a friend or family member can help advocate for you. Hang in there and remember – You are not alone!

By: Marre Carpenter

Marre Carpenter — Wed, 11 Nov 2009 01:24:52 +0000

I was first diagnosed with Lyme in Florida after a visit up north in 1990. I have been bitten with proof at least 4-7 more times with c0-infections. The last bite I got this April of 2009, I went straight to clinic with it still attached/with nice red ring around, and had them remove it themselves! It hadnt been on me for more than 6hrs and was the female, not the male Ixodes. This doc, whom was also an ex military infectious disease medic, whom has seen me for over 10 yrs, never treated me correctly, or will still say I have Lyme! It cannot be disproved this time, and it happened at the same time I had to go to disability court, and still I did not recieved disability for that, they gave it to me, so to say, for a somatization disorder/all in my head, and syncope/falling down, loss of muscle control, arthritis, cannot work, etc…bull. There is something extremely wrong and fishy about all of it. When I first called to florida to get those first records, they were there, now they are not. I have other records missing too now. My new LLMD, even he says he doesnt know how I’ve stayed alive so far, I just tell him for my children. I have had many supposed misdiagnoses. I know I’m on my way out now, my heart slows down and stops, dyslexia worse, etc, yet I hang in there, and I hope somewhere besides a plant in s.e. asia, there will be a cure soon……god bless us all….I have seen an Angel, and know that they/noncaring docs will be judged according to their deeds…..all I can say is-get’em satan, and eat them alive as they have let this disease eat us, I know its vengeful thinking, yet the pain is talking, not I…..

By: Teresa

Teresa — Thu, 05 Nov 2009 17:09:36 +0000

Hi Gary Engleman,
I came across two pictures that you had posted on the internet. Did you ever find out what was making you sick? You said that you took the pictures to a state lab and that you had seen I.D. doctors but they would not give you any medicine until it was figured out what you have. One of the pictures looked like two lines of barrel shaped items, and the other picture looked like flagella. The reason I’m asking these questions, is I have the exact same thing (barrel shaped items) sitting in alcohol. Right now, I’m trying to also figure out what they are? I think it is possible that it is capillaria hepatica. By chance did you have an enlarged liver? Are the barrel shaped items approximately 3mm to 4mm or slightly longer and do they look like they sit inside something that is see-through? Let me know.

By: Kaamajak

Kaamajak — Sun, 30 Aug 2009 20:10:33 +0000

I never ever post but this time I will,Thanks alot for the great blog.