News and resources for neurological Lyme disease and co-infections.
If you haven’t seen it, now is the time you should. http://ticktalkireland.wordpress.com/ Created by a victim of chronic Lyme who continues to suffer, and was told for years and years (until just recently)that there is no Lyme disease in Ireland! Their stated mission: “Encouraging awareness, prevention & treatment of Lyme Disease (Borreliosis) in Ireland.” Sphere: [...]
It is one thing to lump a couple hundred of sufferers into a group of psychosomatic patients…but how do medical doctors respond to the hundreds of thousands of Lyme sufferers from all 50 states who are becoming more ill and increasingly fragile?
It is time for medical doctors to take their heads out of the sand and re-commit their allegiance to the Hippocratic Oath
In 2009, “Science Magazine” published a newly released paper from Whittemore Peterson Institute about the existence of XMRV, (which stands for xenotropic murine leukemia virus related virus,) which looked to be a causative agent in CFS, Fibromyalgia, Prostate Cancer and several other neuro-immune disorders.
The race was on.
All around the world there were doors opened for research scientists to apply this remarkable discovery and try to find better diagnostic tools, better treatment and of course – the great career maker – finding a cure.
I repeatedly try to reassure those who have failed on one or many protocols that it may just be the unique mixture of diseases and immune response, and/or immune strength. It is devastating as this reader will tell you after her most recent commitment to Marshall Protocol. Meet Mindy who has suffered unbearably. Sphere: Related [...]
Gary Wormser, MD, lead author of the IDSA guidelines, attributes many chronic Lyme symptoms to “the aches and pains of daily living.”
Lyme, as we know, is transmitted by ticks. When it moves through the tick, it is coated with a tick salivary protein known as Salp15. The Yale team injected Salp15 into healthy mice and found that it significantly protected the mice from getting Lyme disease. When combined with outer surface proteins of B. burgdorferi, the protection was even greater.
Most of us are so focused on our own unique Lyme; the swollen joints, the mental confusion (Lyme Fog) and every kind of pain that can be imagined. But try, if you can, to watch your child go from a happy youth who fits in where ever he or she goes, to a virtual stranger – depressed, crying all the time…I have been there and would definitely take the pain away from my child than to watch he or she suffer.
I have seen far too many desperate people with Lyme trying the “latest” and disappointed by the lack of response and worse–permanently harmed by it.
Plus – “prominent calcification of the invertebral cranial artery”. My next “event” is expected to be terminal. (oopsie) Add to that; degenerative disc disease – I am fused L4-S1 w/ fusion of L3-4 pending + C1-4. Fibromyalgia & CFS, Major arthritic changes of every joint viewed so far. Reconstructive surgery to my left shoulder and both wrists. My knees are a wreck; stay swollen to about the size of grapefruits 24/7, swelling to melon size frequently.
According to neuro.psychiatryonline.org, as many as 48% of patients with late-stage neuro-Lyme disease may develop hyperacusis, more commonly known as “tinnitus”.
The symptoms of hyperacusis include continual ringing, buzzing and/or hissing sounds and can cause intense pain and even a post-traumatic stress disorder.
