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	<title>Jenna's Lyme Blog &#187; Neurological Lyme disease</title>
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	<description>News and resources for neurological Lyme disease and co-infections.</description>
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		<title>Detox Those Nasty Neurotoxins</title>
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		<pubDate>Fri, 27 Jan 2012 17:27:46 +0000</pubDate>
		<dc:creator>Jenna Smith</dc:creator>
				<category><![CDATA[Chronic Lyme Disease]]></category>
		<category><![CDATA[Coping with Lyme Disease]]></category>
		<category><![CDATA[Neurological Lyme disease]]></category>

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		<description><![CDATA[When the Lyme is being killed, it produces its own neurotoxin in defense. This subsequently clogs the blood, lymph, liver and colon which slows down the detoxification pathways. And as long as the patient is in treatment for Lyme, detoxification needs to be ongoing." ]]></description>
			<content:encoded><![CDATA[<a href="http://www.lymediseaseresource.com/wordpress/detox-those-nasty-neurotoxins/" title="Detox Those Nasty Neurotoxins"><img src="http://www.lymediseaseresource.com/wordpress/wp-content/uploads/2012/01/neurotoxin1.jpg" width="800" height="586" alt="Detox Those Nasty Neurotoxins" style="float:left;padding:0 10px 10px 0;" ></a><p id="top" />
<p style="text-align: left;" align="justify"><span style="font-family: helvetica; font-size: medium;">Neurotoxin effectively means &#8220;nerve poison&#8221;. Neurotoxins act directly on neurons, or nerve cells, by interfering with membrane proteins and ion channels in the central nervous system.  Common external substances that cause neurotoxins in the body are: venom from poisonous insects or reptiles, carbon monoxide, mercury and other heavy metals, ethanol and various other chemical substances. Chemical weapons make use of neurotoxins to impair or kill their enemies.</span></p>
<p style="text-align: left;" align="justify"><span style="font-family: helvetica; font-size: medium;">The destruction of spirochetes also creates neurotoxins which flood the body causing all Lyme symptoms to flare up.  This event is known as a &#8220;Herxheimer reaction&#8221; or more commonly a &#8220;herx&#8221;.  The problem is easy to see&#8230;if you want to destroy Lyme disease and reclaim your life, it means you have to find the courage to actually feel worse before you can feel better.  And not all people handle neurotoxins the same way.  Some bodies eliminate neurotoxins more easily than others, but regardless of the relative &#8220;ease&#8221; with which we rid ourselves of these poisons; pain on top of pain equals more pain.  Killing Lyme is very different than getting rid of mucous after a bad cold.</span></p>
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<p style="text-align: left;" align="justify"><span style="font-family: helvetica; font-size: medium;">The following is taken from:</span><strong></strong><em><strong><span style="font-family: helvetica; font-size: medium;"> <span style="color: #ffffff;"><span style="color: #000000;"><a title="Cleansing Neurotoxin Overload" href="http://www.publichealthalert.org/Articles/victoriabowmann/Cleansing%20Neurotoxin%20Overload.html" target="_blank">Cleansing Neurotoxin Overload by Victoria Bowmann, PhD</a></span></span></span></strong></em></p>
<p><em><strong><span style="font-family: helvetica; font-size: medium;">&#8220;In Lyme disease, the bacteria is a &#8220;smart&#8221; bug which wants to maintain its life within the person. It actually hides itself from the immune system. The Lyme bacteria is neurotoxic and, in order to survive, clogs up the lymphatic system and causes the blood to thicken. This leads to poor blood flow through the liver and a stickiness to the interstitial fluid. </span></strong></em></p>
<p><em><strong><span style="font-family: helvetica; font-size: medium;">The interstitial fluid is the fluid that bathes and nourishes the tissue cells. It also picks up microorganisms, foreign particles, enzymes, proteins, and hormones for processing through the lymphatic system. In addition to the lymphatic system, Lyme prefers to travel through the collagen more than the blood.</span></strong></em></p>
<p><em><strong><span style="font-family: helvetica; font-size: medium;"> Lyme disease is a systemic infection and it can invade and damage any and all organs, glands, and systems of our body. Lyme patients are also challenged by other co-infections that are often overlooked.</span></strong></em></p>
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<p><em><strong><span style="font-family: helvetica; font-size: medium;">Because of its ability to hide from the immune system, Lyme makes itself difficult to diagnose through testing and thereby difficult to design an effective treatment protocol. Often it can mask itself as a different disease such as Chronic Fatigue Syndrome, Fibromyalgia, Multiple Sclerosis, Parkinson&#8217;s, Obsessive Compulsive Disorder (OCD), or Amyotrophic Lateral Sclerosis (Lou Gehrig disease). </span></strong></em></p>
<p><em><strong><span style="font-family: helvetica; font-size: medium;">It is important for the physician to ascertain if Lyme is at a causal level in these diseases. Assuming the patient is being treated with an appropriate protocol, effective detoxification plays an extremely important role in eliminating the neurotoxins from the body.</span></strong></em></p>
<p><em><strong><span style="font-family: helvetica; font-size: medium;">When the Lyme is being killed, it produces its own neurotoxin in defense. This subsequently clogs the blood, lymph, liver and colon which slows down the detoxification pathways. And as long as the patient is in treatment for Lyme, detoxification needs to be ongoing.&#8221; </span></strong></em></p>
<p align="justify"><span style="font-family: helvetica; font-size: medium;">So how do we help our bodies bind up and dispose of these neurotoxins?</span></p>
<p align="justify"><span style="font-family: helvetica; font-size: medium;">There are numerous ways &#8211; from enemas to supplements &#8211; and my own LLMD&#8217;s favorite method: one day a month of apples only &#8211; also known as an &#8220;apple fast&#8221;.  Evidently the apple skin is a powerful binder of neurotoxins.  Just don&#8217;t plan to do much of anything on that day as it can cause headaches and various gastrointestinal upsets as a side effect of the detoxification. The above referenced article has many suggestions for getting rid of neurotoxins and is worth the effort to read it thoroughly: <strong></strong><em><strong> <a title="Cleansing Neurotoxin Overload" href="http://www.publichealthalert.org/Articles/victoriabowmann/Cleansing%20Neurotoxin%20Overload.html" target="_blank">Cleansing Neurotoxin Overload by Victoria Bowmann, PhD</a></strong></em></span></p>
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		<title>Do Electronic Magnetic Fields Contribute to Chronic Lyme Disease?</title>
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		<pubDate>Thu, 22 Sep 2011 19:31:04 +0000</pubDate>
		<dc:creator>Jenna Smith</dc:creator>
				<category><![CDATA[Chronic Lyme Disease]]></category>
		<category><![CDATA[Coping with Lyme Disease]]></category>
		<category><![CDATA[Discussion]]></category>
		<category><![CDATA[Lyme News]]></category>
		<category><![CDATA[Neurological Lyme disease]]></category>
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		<description><![CDATA[Increase your chances of recovering completely from chronic Lyme disease.  Protect yourself from radioactive electromagnetic fields with a Green 8 USA for your cell phone, and a BioElectric Shield to block electro-smog and radioactive EMFs. ]]></description>
			<content:encoded><![CDATA[<a href="http://www.lymediseaseresource.com/wordpress/does-radioactive-emf-contribute-to-chronic-lyme-disease/" title="Do Electronic Magnetic Fields Contribute to Chronic Lyme Disease?"><img src="http://www.lymediseaseresource.com/wordpress/wp-content/uploads/2011/09/EFT.jpg" width="274" height="184" alt="Do Electronic Magnetic Fields Contribute to Chronic Lyme Disease?" style="float:left;padding:0 10px 10px 0;" ></a><p id="top" /><span style="font-family: helvetica; font-size: large;">If you had the time to listen to the fascinating interview presented on this blog last week between Dr. Mercola, Dr. Klinghardt and chronic Lyme disease, you may have heard Dr. Klinghardt&#8217;s assessment of the ultimate havoc that radioactive EMF (Electro-Magnetic Fields) have on our health.</span></p>
<p><span style="font-family: helvetica; font-size: large;">Today, every person on the planet is enveloped in radioactive electromagnetic field (EMF) pollution or &#8220;electro-smog.&#8221;</span></p>
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<p><span style="font-family: helvetica; font-size: large;">Dr. Andrew Weil states that</span><em><span style="font-family: helvetica; font-size: large;">&#8220;Electromagnetic pollution (EMF) may be the most significant form of pollution human activity has produced in this century, all the more dangerous because it is invisible and insensible.&#8221;</span></em></p>
<p><span style="font-family: helvetica; font-size: large;">Where does it come from?</span></p>
<p><span style="font-family: helvetica; font-size: large;">For starters, let&#8217;s look at your home.</span></p>
<p><span style="font-family: helvetica; font-size: large;">The wiring in your walls and outlets create an ever-present electromagnetic field in the room. Nearby power lines radiate even more EMF exposure into your home.</span></p>
<p><span style="font-family: helvetica; font-size: large;">Household appliances and lighting, especially &#8220;energy-saving&#8221; computers, refrigerators, plasma TVs, compact fluorescent light bulbs, and dimmer switches produce a particularly harmful dose of EMFs.</span></p>
<p><span style="font-family: helvetica; font-size: large;">When these energy-efficient electronics and appliances tamp down the electrical current, they create a wildly fluctuating and potentially dangerous electromagnetic field.</span></p>
<p><span style="font-family: helvetica; font-size: large;">High-frequency voltage transients, or &#8220;dirty electricity,&#8221; results and radiates into your home.</span></p>
<p><span style="font-family: helvetica; font-size: large;">These EMFs can also back up along your wiring all the way to the utility, infecting every energy customer in between.</span></p>
<p><span style="font-family: helvetica; font-size: large;">Add in all the everyday things you use – alarm clock, electric razor, hair dryer, electric toothbrush – and you&#8217;re literally cluttering your living environment with toxic doses of EMFs.</span></p>
<p><span style="font-family: helvetica; font-size: large;">In addition to all of that we have wi-fi and mobile phones.</span></p>
<p><span style="font-family: helvetica; font-size: large;">The electrosmog created from all sources, including electronics, cell and cordless phones, wireless technology (especially Blue Tooth and WiFi), certain alarm systems, and radio and TV transmissions are now <em><strong>conclusively</strong></em> proven in over 2,000 studies to be hazardous to your health.</span></p>
<p><span style="font-family: helvetica; font-size: large;">In fact just recently, on May 31, 2011, the World Health Organization reversed previous statements and declared that cell phones very possibly cause cancer.<br />
</span></p>
<p><span style="font-family: helvetica; font-size: large;">But don&#8217;t wait for your cell phone carrier or Internet provider to deliver the bad news. Wireless Internet technology, some home alarm systems, cell phones, digital cordless phones, and blue tooth all use dangerous microwave radiation.</span></p>
<p><span style="font-family: helvetica; font-size: large;">Cell phone radiation comes into all homes from nearby cell phone panels. So whether you are at home or away from home &#8211; there is no place &#8220;safe&#8221; anymore unless you make it that way.<br />
</span></p>
<p><span style="font-family: helvetica; font-size: large;">And then you add wireless technology. Even if you don&#8217;t have WiFi, the EMFs from your neighbors&#8217; wireless technology extends into your living space as well.</span></p>
<p><span style="font-family: helvetica; font-size: large;">As you might already realize, cell phones, especially when used without a safe headset, are very problematic when it comes to EMFs &#8212; for both the user and others. Of all the cell phones, the iPhone presents an exceptional hazard.</span></p>
<p><span style="font-family: helvetica; font-size: large;"><strong><em>Even when switched off</em></strong>, the iPhone acts as a transmitter from other cell phone users. In other words… if you happen to be the closest person to a cell phone tower, you and your iPhone serve as a transmitter station for possibly thousands of other cell phone users further away!</span></p>
<p><span style="font-family: helvetica; font-size: large;">This is not just a theoretical threat.  This is a reality that is currently detriorating the lealth of millions of people around the world &#8211; especially those who are already sick with cancer or chronic Lyme disease.</span></p>
<p><span style="font-family: helvetica; font-size: large;">Every cell in your body undergoes more than 100,000 biochemical reactions per second. And to ensure things run smoothly, every cell, tissue, and organ need to talk to each other and share information about those reactions.</span></p>
<p><span style="font-family: helvetica; font-size: large;">This critical information travels as light signals via the autonomic nervous system throughout your body. These light signals connect to a biophysical field of light that your body creates outside of itself. This outer biophoton field, or &#8220;biofield,&#8221; is sensitive to magnetic and pulsating light fields.</span></p>
<p><span style="font-family: helvetica; font-size: large;">The frequencies used by your body to communicate its information are in the range of a couple of billion Hertz. And <em><strong>that</strong></em> is the problem.</span></p>
<p><span style="font-family: helvetica; font-size: large;"><strong><em>The cell phone industry is now using this very same frequency band for cell phone-to-cell phone communication.</em></strong></span></p>
<p><span style="font-family: helvetica; font-size: large;">We now have strong scientific evidence that these cell phone microwaves are significantly interfering with the healthy communications between your physical body and your external &#8220;biofield&#8221; of light.</span></p>
<p><span style="font-family: helvetica; font-size: large;">In other words, they&#8217;re causing &#8220;static&#8221; and breaking down your body&#8217;s essential communications. Your cells can&#8217;t properly respond to signals from your brain, nervous system and immune system.</span></p>
<p><span style="font-family: helvetica; font-size: large;">According to the<em> Journal of Biochemistry</em>, just living in a community with cell phone reception destroys crucial central signaling pathways in your cells.</span></p>
<p><span style="font-family: helvetica; font-size: large;">Poor cellular communication and the dysfunctional autonomic nervous system that results are known precursors to cancer and other types of chronic illnesses.</span></p>
<p><span style="font-family: helvetica; font-size: large;">A German study very clearly demonstrates these effects from cell phone radiation. For the first five years of exposure to a community cell phone tower, there is no increased cancer risk.</span></p>
<p><span style="font-family: helvetica; font-size: large;">After five years, there is a sharp rise. At the end of ten years, there is a <strong><em>three to five-fold</em></strong> increase in cancer rates.</span></p>
<p><span style="font-family: helvetica; font-size: large;">If you want to know your exposure, check<a title="Antenna Search" href="http://antennasearch.com/" target="_blank"> http://antennasearch.com</a>.  Just enter your address and get a free report listing all existing towers and antennas (even those planned for the future); of every type and even raw power and frequency data for that location.</span></p>
<p><span style="font-family: helvetica; font-size: large;">I guarantee you will be alarmed, or at least you should be.  You can have the best diet with the highest quality organic foods and top shelf supplements, exercise and low stress&#8230;but the radioactive EMFs will be eating away at your health.</span></p>
<p><span style="font-family: helvetica; font-size: large;">What can you do?</span></p>
<p><span style="font-family: helvetica; font-size: large;">There are products galore that advertise their protective power against this electro-pollution &#8211; from canopies that cover your bed while you sleep to headbands, hats, and just about anything you can conceive of.  Don&#8217;t let the hype confuse you.  In my opinion there are two products that are important for you and each member of your family.</span></p>
<p><span style="font-family: helvetica; font-size: large;">First, assuming you use a cell phone (if you don&#8217;t great &#8211; skip down to the next section) you don&#8217;t want to fry your brain (See<a title="Are You Frying Your Brain With Your Cell Phone?" href="http://www.lymediseaseresource.com/Dangers_of_Cell_Phones.html" target="_blank"> &#8220;Are You Frying Your Brain With Your Cell Phone?&#8221;</a>)  Green 8 USA has what you need with all of the science and testimonials you need to feel confident about the quality and safety of this product &#8211; not to mention the economy! You must check this out:<br />
</span></p>
<p style="text-align: center;"><strong><span style="font-family: helvetica; font-size: x-large;"> <a title="Cell Phone Safety" href="http://www.futuretechtoday.net/cmd.php?Clk=2497857%20" target="_blank">Green 8 USA</a></span></strong></p>
<p style="text-align: center;"><strong><span style="font-family: helvetica; font-size: x-large;"><br />
</span></strong></p>
<p style="text-align: left;"><span style="font-family: helvetica; font-size: large;">N</span><span style="font-size: large;"><span style="font-family: helvetica;">ow, what about the rest of the radioactive EMFs pounding at your body day and night.  Do you really think that turning off your wi-fi at night is going to help?  Perhaps&#8230;marginally&#8230;but there is a fantastic new product on the market now that can protect you and your family all the day and night &#8211; its called a <a title="BioElectric Shield" href="http://www.bioelectricshield.com/LDR" target="_blank"><strong>BioElectric Shield</strong></a>.</span></span></p>
<p><span style="font-family: helvetica;"><span style="font-size: large;"> Using applied physics, the living energy BioElectric Shield provides a lifetime of EMF protection, stress reduction, and energy enhancement. The Shield, uses &#8220;Earth Resonance Technology&#8221; developed from Nobel Prize winning physics &#8211; specifically</span><span style="font-size: large;"> the scientifically activated matrix of quartz and other living crystals which:</span></span></p>
<p><object width="600" height="333" classid="clsid:d27cdb6e-ae6d-11cf-96b8-444553540000" codebase="http://download.macromedia.com/pub/shockwave/cabs/flash/swflash.cab#version=6,0,40,0"><param name="src" value="http://www.bioelectricshield.com/plugins/content/jw_allvideos/players/mediaplayer_4.3.swf" /><param name="allowscriptaccess" value="always" /><param name="allowfullscreen" value="true" /><param name="flashvars" value="image=http%3A%2F%2Fwww.bioelectricshield.com%2Fimages%2Fstories%2Fvideo%2FBio-Electric-Shield-Promo-Video.jpg&amp;file=http%3A%2F%2Fwww.bioelectricshield.com%2Fimages%2Fstories%2Fvideo%2FBio-Electric-Shield-Promo-Video.flv&amp;plugins=viral-1d" /><embed width="600" height="333" type="application/x-shockwave-flash" src="http://www.bioelectricshield.com/plugins/content/jw_allvideos/players/mediaplayer_4.3.swf" allowscriptaccess="always" allowfullscreen="true" flashvars="image=http%3A%2F%2Fwww.bioelectricshield.com%2Fimages%2Fstories%2Fvideo%2FBio-Electric-Shield-Promo-Video.jpg&amp;file=http%3A%2F%2Fwww.bioelectricshield.com%2Fimages%2Fstories%2Fvideo%2FBio-Electric-Shield-Promo-Video.flv&amp;plugins=viral-1d" /></object></p>
<ul>
<li><span style="font-size: large;">PROTECTS you from cell phones, computers and other electromagnetic radiation by deflecting and redirecting this unhealthy energy; </span></li>
<li><span style="font-family: helvetica; font-size: large;"> STRENGTHENS your own natural healthy energy field, amplifying your abilities to handle stressful situations and people more easily; </span></li>
<li><span style="font-family: helvetica; font-size: large;"> ENHANCES your natural energy, improving focus, performance and goal achievement.</span></li>
<li><span style="font-family: helvetica; font-size: large;">BALANCES your system to the level of your DNA and helps to keep your immune system strong.</span></li>
</ul>
<p style="text-align: center;"><strong><a title="BioElectric Shield" href="http://www.bioelectricshield.com/LDR" target="_blank"><span style="font-size: x-large;"><span style="font-family: helvetica;">BioElectric Shield</span></span></a></strong></p>
<p style="text-align: left;"><span style="font-size: x-large;"><span style="font-family: helvetica;"><span style="font-size: large;">Increase</span></span></span><span style="font-size: large;"><span style="font-family: helvetica;"> your chances of recovering completely from chronic Lyme disease.  Protect yourself from radioactive electromagnetic fields with a <a title="Cell Phone Safety" href="http://www.futuretechtoday.net/cmd.php?Clk=2497857%20" target="_blank">Green 8 USA</a> for your cell phone, and a <a title="BioElectric Shield" href="http://www.bioelectricshield.com/LDR" target="_blank">BioElectric Shield</a> to block electro-smog and radioactive EMFs.</span></span><strong><span style="font-size: x-large;"><span style="font-family: helvetica;"><br />
</span></span></strong></p>
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		<title>Genetic Frankenstein: A Link between Chronic Lyme Disease and Alzheimer’s?</title>
		<link>http://www.lymediseaseresource.com/wordpress/genetic-frankenstein-a-link-between-chronic-lyme-disease-and-alzheimer%e2%80%99s/</link>
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		<pubDate>Tue, 20 Sep 2011 18:29:16 +0000</pubDate>
		<dc:creator>Jenna Smith</dc:creator>
				<category><![CDATA[Chronic Lyme Disease]]></category>
		<category><![CDATA[Lyme News]]></category>
		<category><![CDATA[Neurological Lyme disease]]></category>
		<category><![CDATA[Research and Development]]></category>

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		<description><![CDATA[Back in 1985, Dr. Alan MacDonald stunned the medical world with a special slide show on neo-natal tissue that he had amassed over years of autopsying stillborn babies as the pathologist at South Hampton Hospital. Using a darkfield microscope technique to capture the images on film, Dr. MacDonald presented his shocking hypothesis to the world in Vienna at the Second International Symposium on Lyme Disease and Related Disorders.]]></description>
			<content:encoded><![CDATA[<a href="http://www.lymediseaseresource.com/wordpress/genetic-frankenstein-a-link-between-chronic-lyme-disease-and-alzheimer%e2%80%99s/" title="Genetic Frankenstein: A Link between Chronic Lyme Disease and Alzheimer’s?"><img src="http://www.lymediseaseresource.com/wordpress/wp-content/uploads/2008/10/dramacdonald.jpg" width="156" height="132" alt="Genetic Frankenstein: A Link between Chronic Lyme Disease and Alzheimer’s?" style="float:left;padding:0 10px 10px 0;" ></a><p id="top" /><span style="font-family: helvetica; font-size: large;">Back in 1985, Dr. Alan MacDonald stunned the medical world with a special slide show on neo-natal tissue that he had amassed over years of autopsying stillborn babies as the pathologist at South Hampton Hospital.</span></p>
<p><span style="font-family: helvetica; font-size: large;">Using a darkfield microscope technique to capture the images on film, Dr. MacDonald presented his shocking hypothesis to the world in Vienna at the Second International Symposium on Lyme Disease and Related Disorders.</span></p>
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<p><span style="font-family: helvetica; font-size: large;">Instead of pictures of swollen knees, Dr. MacDonald showed slide after slide of spirochete infected tissue from these babies who were never able to survive outside the womb.</span></p>
<p><span style="font-family: helvetica; font-size: large;">The hostility from the other scientists was at that time more of direct censure than verbal assault, but few doctors could believe what their own eyes were showing them. Lyme disease cannot be contracted in the womb, or passed from the mother in vitro – so the old guard insisted.</span></p>
<p><span style="font-family: helvetica; font-size: large;">His pictures of cyst forms and other bizarre shapes and truncated strings did not look like the clear spiral shape of Borrelia, but when Dr. MacDonald added special chemicals to the tissue, these shapes showed up in the same way that spirochetes do &#8211; emitting a soft fluorescent glow.</span></p>
<p><span style="font-family: helvetica; font-size: large;">This convinced Dr. MacDonald that the Lyme spirochetes were behaving exactly like syphilis spirochetes by carefully researching literature from the world’s top experts on syphilis. The queer shapes – hooks, rings balls and truncated strings mixed in with a few clear spirals. This was evidence of the morphic nature of the bacteria, and further proof for his hypothesis.</span></p>
<p><span style="font-family: helvetica; font-size: large;">It wasn’t surprising that Dr. MacDonald the researcher began working with Dr. Burrascano the practicing physician. Together they became more and more convinced that Lyme disease was the mystery infection behind significant illnesses, chief amongst them, Alzheimer’s.</span></p>
<p><span style="font-family: helvetica; font-size: large;">Unfortunately, the hounds were unleashed and a host of doctors were run out of town by medical professionals who followed the tenets of Dr. Steer in Boston, MA. Dr. MacDonald eventually found the adversity too much to bear and moved to Texas where he was haunted by the unanswered questions of his research. Specifically, was Lyme disease causing Alzheimer’s?</span></p>
<p><span style="font-family: helvetica; font-size: large;">Fast-forward to 2006, Dr. MacDonald has returned to New York, this time to St. Catherine of Siena Medical Center in Smithtown, on the Long Island Sound where he immediately revived his research. He began by ordering ten Alzheimer’s brains from a brain bank to slice and study under the darkfield microscope.</span></p>
<p><span style="font-family: helvetica; font-size: large;">What he found, is beyond alarming. To read the full text of his actual reports click here.</span></p>
<p><span style="font-family: helvetica; font-size: large;">He found that seven of the ten brains “…lit up like a Christmas tree.” They were loaded with a genetic Frankenstein – DNA of the spirochetes combined with human chromosomes.</span></p>
<p><span style="font-family: helvetica; font-size: large;">The medical term, “transfection” is not so frightening, but the reality is devastating. It basically means that your own body begins producing the infection. As Dr. MacDonald said, “Once it is in your DNA and you’re churning it out yourself, you’re cooked!”</span></p>
<p><span style="font-family: helvetica; font-size: large;">For the people who are churning it out, it will certainly mean a constant struggle, but for those who are just beginning to get sick, Dr. MacDonald’s work may bring a miracle.</span></p>
<p><span style="font-family: helvetica; font-size: large;"><a href="http://www.molecularalzheimer.org/" target="_blank">To see Dr. MacDonald&#8217;s website click here.</a></span></p>
<p><a title="Borrellia Transfection and chronic Lyme" href="http://www.ncbi.nlm.nih.gov/pubmed/16481123" target="_blank"><span style="font-family: helvetica; font-size: large;">To read PubMed&#8217;s abstract on Dr. MacDonald&#8217;s research on &#8220;Transfection&#8221;, click here.</span></a></p>
<p><span style="font-family: helvetica; font-size: large;"><a href="http://www.molecularalzheimer.org/files/Compiled_Medical_Hyoptheses_6_papers.pdf" target="_blank">To read Dr. MacDonald’s compiled medical hypothesis click here.</a></span></p>
<p><span style="font-family: helvetica; font-size: large;">NOTE: This was originally published in 2008 before Dr. MacDonald retired &#8211; ironically due to Alzheimer&#8217;s.  Thankfully, different aspects of his work is being continued by many researchers across the country.</span></p>
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		<title>Another Co-infection of Lyme Disease &#8211; Does Morgellons Really Exist?</title>
		<link>http://www.lymediseaseresource.com/wordpress/another-co-infection-of-lyme-disease-does-morgellons-really-exist/</link>
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		<pubDate>Thu, 15 Sep 2011 16:52:32 +0000</pubDate>
		<dc:creator>Jenna Smith</dc:creator>
				<category><![CDATA[Chronic Lyme Disease]]></category>
		<category><![CDATA[Co-infections]]></category>
		<category><![CDATA[Neurological Lyme disease]]></category>

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		<description><![CDATA[The symptoms include itching, biting and crawling sensations, “filaments” or fibers which emerge from the skin, skin lesions which range from minor to disfiguring, joint pain, debilitating fatigue, changes in cognition, memory loss, mood disturbance and serious neurological manifestations.  At this time, the cause of Morgellons disease is unknown and there is no known cure.]]></description>
			<content:encoded><![CDATA[<a href="http://www.lymediseaseresource.com/wordpress/another-co-infection-of-lyme-disease-does-morgellons-really-exist/" title="Another Co-infection of Lyme Disease &#8211; Does Morgellons Really Exist?"><img src="http://www.lymediseaseresource.com/wordpress/wp-content/uploads/2011/09/morgellons1.jpg" width="259" height="194" alt="Another Co-infection of Lyme Disease &#8211; Does Morgellons Really Exist?" style="float:left;padding:0 10px 10px 0;" ></a><p id="top" /><span style="font-family: helvetica; font-size: large;">In 2001, according to Mary Leitao, her then two-year-old son developed sores under his lip and began to complain of &#8220;bugs.&#8221;</span></p>
<p><span style="font-family: helvetica; font-size: large;">Leitao, who graduated with a BS in Biology, and worked for five years  at Boston hospitals as a lab technician before becoming a stay-at-home  mother, says she examined the sores with her son&#8217;s toy microscope and  discovered red, blue, black, and white fibers.</span></p>
<p><span id="more-2370"></span></p>
<p><span style="font-family: helvetica; font-size: large;">She states that she took her son to see at least eight different  doctors who were unable to find any disease, allergy, or anything  unusual about her son&#8217;s described symptoms. Fred Heldrich, a Johns Hopkin&#8217;s pediatrician with a reputation &#8220;for solving mystery cases,&#8221; examined Leitao&#8217;s son.</span></p>
<p><span style="font-family: helvetica; font-size: large;">Heldrich found nothing abnormal about the boy&#8217;s skin, wrote to the  referring physician that &#8220;Leitao would benefit from a psychiatric  evaluation and support,&#8221; and registered his worry about Leitao&#8217;s &#8220;use&#8221;  of her son. <strong><em>Psychology Today</em></strong> reports that Leitao last consulted an unnamed Johns Hopkins infectious  disease specialist who after reviewing her son&#8217;s records refused to see  him, suggesting Leitao herself might suffer from &#8220;Munchausen&#8217;s by proxy&#8221;, a psychiatric syndrome in which a parent pretends a child is sick or makes him sick to get attention from the medical system.&#8221; This opinion of a potential psychological disorder, according to  Leitao, was shared by several medical professionals she sought out:</span></p>
<blockquote>
<div><span style="font-family: helvetica; font-size: large;">(Leitao) said she long ago grew accustomed to being doubted by  doctors whenever she sought help for her son, who is now 7 and still  suffering from recurring lesions. &#8220;They suggested that maybe I was  neurotic,&#8221; Leitao said, &#8220;They said they were not interested in seeing  him because I had Munchausen Syndrome by Proxy.&#8221;</span></div>
</blockquote>
<p><span style="font-family: helvetica; font-size: large;">Leitao says that her son developed more sores, and more fibers continued to poke out of them.<sup id="cite_ref-psychologytoday_12-2"><a href="http://en.wikipedia.org/wiki/Morgellons#cite_note-psychologytoday-12"></a></sup> She and her husband, Edward Leitao, an internist with South Allegheny Internal Medicine in Pennsylvania, felt their son suffered from &#8220;something unknown.&#8221;</span></p>
<p><span style="font-family: helvetica; font-size: large;">She chose the name <em>Morgellons disease</em> (with a hard <em>g</em>) from a description of an illness in the monograph <em>A Letter to a Friend</em> by Sir Thomas Browne,  in 1690, wherein Browne describes several medical conditions in his  experience, including &#8220;that endemial distemper of children in Languedoc, called the morgellons, wherein they critically break out with harsh hairs on their backs.&#8221; There is no suggestion that the symptoms described by Browne are linked to the alleged modern cases.</span></p>
<p><span style="font-family: helvetica; font-size: large;">Leitao started the Morgellons Research Foundation (MRF) in 2002 (informally) and as an official non-profit in 2004. The MRF states the following information on its website.  Morgellons disease is a poorly understood condition which a growing  number of physicians believe to be a chronic infectious disease. The  disease can be both disabling and disfiguring.</span></p>
<p><span style="font-family: helvetica; font-size: large;">The symptoms include  itching, biting and crawling sensations, “filaments” or fibers which  emerge from the skin, skin lesions which range from minor to  disfiguring, joint pain, debilitating fatigue, changes in cognition,  memory loss, mood disturbance and serious neurological manifestations.  At this time, the cause of Morgellons disease is  unknown and there is no known cure.</span></p>
<p><span style="font-family: helvetica; font-size: large;">The following signs or symptoms are the basis of Morgellons Disease as  defined by patients that fit within a consistent boundary that is also  outside the boundary of other “known” diseases. The initial three  characteristics parallel a much more entrenched illness, Delusions of  Parasitosis (DP) named decades before today&#8217;s laboratory technology and  infection/immunity knowledge, driven by HIV, developed. The more recent  findings listed below provide a far broader and more consistent evidence  base, strongly supporting the likelihood that DP is a prematurely  assigned label to an organic, rather than purely psychiatric disease.</span></p>
<p><span style="font-family: helvetica; font-size: large;">1. <strong>“Filaments”</strong> are reported in and on skin lesions and  at times extruding from intact-appearing skin. White, blue, red, and  black are common among described fiber colors. Size is near microscopic,  and good clinical visualization requires 10-30 X. Patients frequently  describe ultraviolet light generated fluorescence. They also report  black or white granules, similar in size and shape to sand grains, on or  in their skin or on clothing. Most clinicians willing to invest in a  simple hand held commercial microscope have thus far been able to  consistently document the filaments.</span></p>
<p><span style="font-family: helvetica; font-size: large;">2. <strong>Movement sensations</strong>, both beneath and on the skin  surface. Sensations are often described by the patient as intermittently  moving, stinging or biting. Involved areas can include any skin region  (such as over limbs or trunk), but may be limited to the scalp, nasal  passages, ear canals, or face&#8230;and curiously, legs below the knees.</span></p>
<p><span style="font-family: helvetica; font-size: large;">3. <strong>Skin lesions</strong>, both (a) spontaneously appearing and  (b) self-generated, often with pain or intense itching. The former (a)  may initially appear as “hive-like”, or as “pimple-like” with or without  a white center. The latter (b) appear as linear or “picking”  excoriations. Even when not self-generated (as in unreachable regions of  babies’ skin), lesions often progress to open wounds that heal  incompletely (e.g., heal very slowly with discolored epidermis or seal  over with a thick gelatinous outer layer.). Evidence of lesions persists  visually for years.</span></p>
<p><span style="font-family: helvetica; font-size: large;">4. <strong>Musculoskeletal Effects and Pain</strong> is usually present,  manifest in several ways. Pain distribution is broad, and can include  joint(s), muscles, tendons and connective tissue. Both vascular and  “pressure” headaches and vertebral pain are particularly common, the  latter usually with premature (e.g., age 20) signs of degeneration of  both discs and vertebrae.</span></p>
<p><span style="font-family: helvetica; font-size: large;">5. <strong>Aerobic limitation</strong> is universal and significant  enough to interfere with the activities of daily living. Most patients  meet the Fukuda Criteria for Chronic Fatigue Syndrome as well (Fukuda,  Ann. Int. Med., 1994). Cardiology data and consistently elevated heart  rates suggest a persistent myocarditis creating lowered cardiac output  that has been partially compensated for by Starling’s Law.</span></p>
<p><span style="font-family: helvetica; font-size: large;">6. <strong>Cognitive dysfunction</strong>, includes frontal lobe  processing signs interfering with logical thinking as well as short-term  memory and attention deficit. All are measurable by Standard  Psychometric Test batteries.</span></p>
<p><span style="font-family: helvetica; font-size: large;">7. <strong>Emotional effects</strong> are present in most patients.  Character typically includes loss or limitation of boundary control (as  in bipolar illness) and intermittent obsessional state. Degree varies  greatly from virtually absent to seriously life altering.</span></p>
<p><span style="font-family: helvetica; font-size: large;">Leitao stated that she initially hoped to receive information from  scientists or physicians who might understand the problem, but instead,  thousands of others contacted her describing their sores and fibers, as  well as neurological symptoms, fatigue, muscle and joint pain, and other  symptoms.</span></p>
<p><span style="font-family: helvetica; font-size: large;">The MRF claims to have received self-identified reports of Morgellons  from all 50 US states and 15 other countries, including Canada, the UK,  Australia, and the Netherlands, and states that they have been contacted  by over 12,000 families.</span></p>
<p><span style="font-family: helvetica; font-size: large;">In May 2006, a CBS news segment on Morgellons aired in Southern California. The same day the Los Angeles County Department of Health services  issued a statement saying, &#8220;No credible medical or public health  association has verified the existence or diagnosis of &#8216;Morgellons  Disease&#8217;,&#8221; and &#8220;at this time there is no reason for individuals to panic  over unsubstantiated reports of this disease.&#8221;</span></p>
<p><span style="font-family: helvetica; font-size: large;">In June and July 2006 there were segments on <em><strong>CNN</strong></em>, <strong>ABC</strong>&#8216;s <strong><em>Good Morning America</em></strong>, and <strong>NBC</strong>&#8216;s <strong><em>The Today Show</em></strong>. In August 2006, a segment of the ABC show <em>Medical Mysteries</em> was devoted to the subject. The disease was featured on <strong>ABC&#8217;</strong>s <strong><em>Nightline</em></strong> on January 16, 2008, and as the cover story of the January 20, 2008 issue of the <em>Washington Post Magazine.</em></span></p>
<p><span style="font-family: helvetica; font-size: large;">The first article to propose Morgellons as a new disease in a  scientific journal was a review article co-authored by members of the  MRF and published in 2006 by the <strong><em>American Journal of Clinical Dermatology</em>.</strong></span></p>
<p><span style="font-family: helvetica; font-size: large;">An article in the <strong><em>San Francisco Chronicle</em></strong> reported, &#8220;There have been no clinical studies&#8221; (of Morgellons disease). A <strong><em>New Scientist</em></strong> article in 2007 also covered the phenomenon noting that people are reporting similar symptoms in Europe and Australia.</span></p>
<p><span style="font-family: helvetica; font-size: large;">In an article published in <strong><em>The Los Angeles Times</em></strong> on April 22, 2010, singer-songwriter Joni Mitchell claimed to be a sufferer of the condition, stating:</span></p>
<blockquote>
<div><span style="font-family: helvetica; font-size: large;">&#8220;I have this weird, incurable disease that seems like it&#8217;s from  outer space, but my health&#8217;s the best it&#8217;s been in a while, Two nights  ago, I went out for the first time since Dec. 23: I don&#8217;t look so bad  under incandescent light, but I look scary under daylight. Garbo and  Dietrich hid away just because people became so upset watching them age,  but this is worse. Fibers in a variety of colors protrude out of my  skin like mushrooms after a rainstorm: they cannot be forensically  identified as animal, vegetable or mineral. Morgellons is a slow,  unpredictable killer — a terrorist disease: it will blow up one of your  organs, leaving you in bed for a year. But I have a tremendous will to  live: I&#8217;ve been through another pandemic — I&#8217;m a polio survivor, so I  know how conservative the medical body can be. In America, the  Morgellons is always diagnosed as &#8220;delusion of parasites,&#8221; and they send  you to a psychiatrist. I&#8217;m actually trying to get out of the music  business to battle for Morgellons sufferers to receive the credibility  that&#8217;s owed to them.&#8221;</span></div>
</blockquote>
<p><span style="font-family: helvetica; font-size: large;">Former Major League Baseball pitcher Billy Koch and his entire immediate family have been noted in the media to be sufferers.</span></p>
<p><span style="font-family: helvetica; font-size: large;">Following a mailing campaign coordinated by the Morgellons Research  Foundation in which &#8220;self-described sufferers clicked on the foundation  Web site and sent thousands of form letters to members of Congress, a CDC (Center for Disease Control) task force first met in June 2006.</span></p>
<p><span style="font-family: helvetica; font-size: large;">In July 2006, Dan Rutz, MPH, a communications specialist for the CDC,  said, &#8220;We&#8217;re not ready to concede there&#8217;s a new disease, but the volume  of concern has stepped up because a lot of people are writing or calling  their congressmen about it.&#8221;</span></p>
<p><span style="font-family: helvetica; font-size: large;">By August 2006, the task force consisted of 12 people, including two  pathologists, a toxicologist, an ethicist, a mental health expert and  specialists in infectious, parasitic, environmental and chronic  diseases. In May 2007, <em><strong>KGW-TV</strong> <strong>Newschannel 8</strong></em>&#8216;s Laural Porter asked Rutz if he had any information about the nature  of the fibers. At that time Rutz said, &#8220;None. We don&#8217;t know. We haven&#8217;t  studied them in a lab yet. There is nothing to imply there is [an  infectious process], but our mind is open to everything, including that  remote possibility.&#8221;</span></p>
<p><span style="font-family: helvetica; font-size: large;">In June 2007, the CDC opened a website on &#8220;Unexplained Dermopathy (aka &#8216;Morgellons&#8217;)&#8221;. By November 2007, the CDC had announced an investigation process,  stating that, &#8220;The primary goals of the investigation are to better  describe the clinical and epidemiologic features of this condition and  to generate hypotheses about possible risk factors.&#8221; Kaiser Permanente in Northern California was chosen to assist with the investigation,  which will begin when the scientific protocols and review board  structure have been prepared and approved.</span></p>
<p><span style="font-family: helvetica; font-size: large;">Investigators will report on  the geographic distribution of the illness and estimate rates of illness  in affected communities. The investigation will involve skin biopsies  from affected patients and characterization of foreign material such as  fibers or threads obtained from patients to determine their potential  source.</span></p>
<p><span style="font-family: helvetica; font-size: large;">In January 2008 it was reported that CDC was enlisting the aid of the  U.S. Armed Forces Institute of Pathology and the American Academy of  Dermatology &#8220;to conduct &#8216;immediate&#8217; and &#8216;rigorous&#8217; research.&#8221;</span></p>
<p><span style="font-family: helvetica; font-size: large;">On 4 November 2009, the CDC issued a preliminary report based on an external peer review of the project. As of 24 March 2011  CDC said &#8220;We recently completed the data analysis. A final report has  been submitted for publication in a peer-reviewed scientific journal.&#8221;</span></p>
<p><span style="font-family: helvetica; font-size: large;">A study conducted of 108 patients at the Mayo Clinic was published in <strong><em>Archives of Dermatology</em></strong> on May 16, 2011. The study failed to find evidence of skin infestation  despite doing skin biopsies and examining specimens provided by the  patients. The study, which was conducted between 2001 and 2007,  concluded that the feeling of skin infestation was a delusion, &#8220;delusional parasitosis&#8221;.</span></p>
<p><span style="font-family: helvetica; font-size: large;">However, there are thousands upon thousands of people who share the same symptoms and so far the mainstream medical community is unwilling to admit to the symptoms that are very physical and inexplicable.  Once again, it would appear that it is easier to say to the patient &#8220;You are crazy.&#8221; or attribute the specific symptoms as delusional and/or anxiety driven self mutilation.</span></p>
<p><span style="font-family: helvetica; font-size: large;">This is</span></p>
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		<title>Chronic Lyme Disease Webinar Coming</title>
		<link>http://www.lymediseaseresource.com/wordpress/chronic-lyme-disease-webinar-coming/</link>
		<comments>http://www.lymediseaseresource.com/wordpress/chronic-lyme-disease-webinar-coming/#comments</comments>
		<pubDate>Sat, 23 Jul 2011 19:31:05 +0000</pubDate>
		<dc:creator>DavidRodgers</dc:creator>
				<category><![CDATA[Book Reviews]]></category>
		<category><![CDATA[Chronic Lyme Disease]]></category>
		<category><![CDATA[Co-infections]]></category>
		<category><![CDATA[Coping with Lyme Disease]]></category>
		<category><![CDATA[Discussion]]></category>
		<category><![CDATA[Great Imitator]]></category>
		<category><![CDATA[Lyme News]]></category>
		<category><![CDATA[Neurological Lyme disease]]></category>
		<category><![CDATA[Personal stories]]></category>

		<guid isPermaLink="false">http://www.lymediseaseresource.com/wordpress/?p=2313</guid>
		<description><![CDATA[You may want a little more background about my health protocols, so I also have a free e-report that I have made available called "Diet Soda Makes You Fatter Than Regular and 10 More Shocking Health Truths." This is available at my website - <a href="http://www.nutrientbalance.com" target="_blank">www.nutrientbalance.com</a> - and more information is available there as well.]]></description>
			<content:encoded><![CDATA[<a href="http://www.lymediseaseresource.com/wordpress/chronic-lyme-disease-webinar-coming/" title="Chronic Lyme Disease Webinar Coming"><img src="http://www.lymediseaseresource.com/wordpress/wp-content/uploads/2011/07/David-Rodgers4-261x300.jpg" width="261" height="300" alt="Chronic Lyme Disease Webinar Coming" style="float:left;padding:0 10px 10px 0;" ></a><p id="top" /><span style="font-family: helvetica; font-size: large;">Hi everyone. My name is David Rodgers, and it is my pleasure to be posting in Jenna&#8217;s Lyme Disease blog, as she has done a great job keeping everyone updated on a regular basis about many different types of Lyme protocols, including diet, supplements, drugs, IV treatment, and more. She has truly been a great help to many in the community and I want to thank her for that.</span></p>
<p><span style="font-family: helvetica; font-size: large;">Jenna has allowed me to let you know about an upcoming event I have planned, which I think will be of great benefit to many of you. For background information, I have had Lyme Disease for at least 10 years (although diagnosed about 4.5 years ago). Over these 10 years, I kept my head in the books, so to speak, and researched everything I could about all-natural ways to treat Lyme and similar conditions.</span></p>
<p><span id="more-2313"></span></p>
<p><span style="font-family: helvetica; font-size: large;">During these 10 years of research, I have also completed a Masters of Science in Nutrition at the University of Bridgeport, and I now practice as a nutritionist in the Detroit suburbs, as well as via phone or online video conferencing for anyone throughout the world.</span></p>
<p><span style="font-family: helvetica; font-size: large;">As Jenna mentioned in one of her posts not too long ago, it seems like the Lyme patients who are disciplined regarding diet and lifestyle do the best with their treatments. The problem I&#8217;ve found is that people have differing views on what foods are healthy or not, and they are also unclear about which supplements are truly the best for optimizing health and avoiding deficiencies.</span></p>
<p><span style="font-family: helvetica; font-size: large;">For these reasons, I am putting on a webinar called &#8220;Chronic Lyme Disease: 7 Natural, Proven Steps to Reduce Symptoms.&#8221; This will take place on Tuesday, July 26, 2011 at 8:30EST (5:30PST). All that you need to view it is an Internet connection and speakers. This webinar is thoroughly backed by the latest research and by my clinical experience.</span></p>
<p><span style="font-family: helvetica; font-size: large;">Sometimes webinars are mainly a way to sell people some product. This is not the case here. I will be briefly letting folks know that I am open for new clients, but otherwise, I have nothing to sell &#8211; it is simply meant to help as many people as possible know about the latest research for diet, supplements, and lifestyle, and their connection to Lyme Disease. I don&#8217;t even sell supplements, but I&#8217;ll let you know which ones are worth your money.</span></p>
<p><span style="font-family: helvetica; font-size: large;">You may want a little more background about my health protocols, so I also have a free e-report that I have made available called &#8220;Diet Soda Makes You Fatter Than Regular and 10 More Shocking Health Truths.&#8221; This is available at my website &#8211; <a>http://www.nutrientbalance.com</a> &#8211; and more information is available there as well.</span></p>
<p><span style="font-family: helvetica; font-size: large;">To sign up for the free webinar, <a title="Chronic Lyme Webinar" href="http://www.nutrientbalance.com/dietsodareport/freewebinar" target="_blank">click this link</a>.</span></p>
<p><span style="font-family: helvetica; font-size: large;">Thanks, and if anyone has a question, you may email me at david@nutrientbalance.com &#8211; you may also send me questions via this email to be answered at the webinar. Also, please share this via Facebook, etc. or email the info to people you know with Lyme or similar conditions (chronic fatigue, fibromyalgia). Looking forward to seeing everyone there&#8230;</span></p>
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		<title>Happiness is&#8230;Total Recovery From Chronic Lyme Disease. IVIG Part One</title>
		<link>http://www.lymediseaseresource.com/wordpress/happiness-is-total-recovery-from-chronic-lyme-disease-ivig-part-one/</link>
		<comments>http://www.lymediseaseresource.com/wordpress/happiness-is-total-recovery-from-chronic-lyme-disease-ivig-part-one/#comments</comments>
		<pubDate>Mon, 27 Jun 2011 16:08:31 +0000</pubDate>
		<dc:creator>Jenna Smith</dc:creator>
				<category><![CDATA[Chronic Lyme Disease]]></category>
		<category><![CDATA[Coping with Lyme Disease]]></category>
		<category><![CDATA[Discussion]]></category>
		<category><![CDATA[Neurological Lyme disease]]></category>
		<category><![CDATA[Personal stories]]></category>
		<category><![CDATA[Treatment Protocols]]></category>

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		<description><![CDATA[Every three weeks, I felt my energy increase.  A side effect of the infusion is a throbbing headache - my first one last 3 days - as bad as my worst migraine - but with lots of water and Benadryl (doctor's orders), the headaches became less severe until they are now almost completely gone (I take Excedrin Migraine at the first hint of the throbbing and it dissipates.)]]></description>
			<content:encoded><![CDATA[<a href="http://www.lymediseaseresource.com/wordpress/happiness-is-total-recovery-from-chronic-lyme-disease-ivig-part-one/" title="Happiness is&#8230;Total Recovery From Chronic Lyme Disease. IVIG Part One"><img src="http://www.lymediseaseresource.com/wordpress/wp-content/uploads/2010/10/happiness.jpg" width="224" height="225" alt="Happiness is&#8230;Total Recovery From Chronic Lyme Disease. IVIG Part One" style="float:left;padding:0 10px 10px 0;" ></a><p id="top" /><span style="font-family: helvetica; font-size: large;">We all want total recovery, not these percentages you read about&#8230;.we want it GONE!</span></p>
<p><span style="font-family: helvetica; font-size: large;">Now that I am truly on the road to recovery, I am eager to share my experiences, with the clear understanding that we are all different and what is working for me may not work for you.  The key is to keep trying &#8211; never give up and cling to those good days.  Whatever you do, DON&#8217;T ignore it hoping it will go away!</span></p>
<p><span id="more-1990"></span></p>
<p><span style="font-family: helvetica; font-size: large;">After bumping along on the bottom in spite of many false hopes and wild gyrations in between (the roller-coaster ride &#8211; you know what I am talking about), I was diagnosed as immune deficient last year and began IVIG infusions in October of 2010 every 3 weeks. </span></p>
<p><span style="font-family: helvetica; font-size: large;">I was originally diagnosed and prescribed this treatment by Dr. Katz in Orange, CT who has been very successful in helping people recover from Lyme using IVIG infusions, however, he is the first person to say that IVIG is not a protocol for chronic Lyme disease.</span></p>
<p><span style="font-family: helvetica; font-size: large;">Are you confused yet?</span></p>
<p><span style="font-family: helvetica; font-size: large;">I am not a medical doctor, so I can only share my experience and report on what I have researched.  Ironically, the only post on Dr. Yaller&#8217;s blog this year (excellent LLD in Germantown, MD) is entitled, <a href="http://lymemd.blogspot.com/2011/04/clongen-reports-many-unusual-organisms.html">&#8220;Immune Disfuntion and Antibiotics&#8221;</a> that helps explain what happens to the immune system when you have Lyme disease (and you can imagine far worse consequences with multiple co-infections.)</span></p>
<p><span style="font-family: helvetica; font-size: large;">One of our readers described some of the dangers of IVIG </span><a title="warnings about ivig" href="http://www.lymediseaseresource.com/wordpress/warnings-about-ivig/"><span style="font-size: large;">(</span><span style="font-family: arial,helvetica,sans-serif; font-size: large;">http://www.lymediseaseresource.com/wordpress/warnings-about-ivig/)</span></a><span style="font-family: helvetica; font-size: large;">, and I am finding that many people are afraid of the IVIG infusions.  If you picture your immune system as an army to protect your body from invaders, and imagine all of the great and small pathogens that wear down our body and demand immune response, then add to that lack of sleep, over-programmed lives, stress overload, improper diet, pollution, allergies, heavy metal poisoning&#8230;our bodies have become little toxic waste dumps with our immune systems running on empty.</span></p>
<p><span style="font-family: helvetica; font-size: large;">Some people with Lyme disease have an over-active immune system that will attack the body and cause additional physical problems, some of which can be life threatening.  So the first step is getting a complete evaluation by an expert immunologist or neurologist on the condition of your immune system.</span></p>
<p><span style="font-family: helvetica; font-size: large;">If your immune system is compromised &#8211; and it doesn&#8217;t necessarily need to be by that much if the condition has been persisting for many years &#8211; then a systematic plan needs to be put in place to jump-start and permanently strengthen your immune system so that it can better battle your chronic Lyme disease and co-infections.</span></p>
<p><span style="font-family: helvetica; font-size: large;">I have waited since November to write this post so that I could give a thorough report of the consequences of my strategies &#8211; including some independent decisions I made that backfired in a bad way (but taught me a lesson I am happy to share.)</span></p>
<p><span style="font-family: helvetica; font-size: large;">Every three weeks, I felt my energy increase.  A side effect of the infusion is a throbbing headache &#8211; my first one last 3 days &#8211; as bad as my worst migraine &#8211; but with lots of water and Benadryl (doctor&#8217;s orders), the headaches became less severe until they are now almost completely gone (I take Excedrin Migraine at the first hint of the throbbing and it dissipates.)</span></p>
<p><span style="font-family: helvetica; font-size: large;">The energy level built slowly.  A few good days with the rest comatose in bed because I tried to do too much while feeling good for the first time in so many years.  As the months passed and the cold Maine winter passed, I found I could spend more time outside walking, mucked stalls and filled water buckets for the first time in five years (OK, it took me ten times longer but I was on my feet doing it!), and in the last few weeks, having found help for the chores, I am able to use the blossoming energy to actually ride my horses &#8211; not a one day celebration being lead around on a line, but holding the reins in my hands and trotting &#8211; even cantering my huge warmbloods &#8211; without any fear!  Yes, I have a long way to go to regain my stamina, muscle tone, independent muscle control, strength&#8230;but my dreams are coming true!</span></p>
<p><span style="font-family: helvetica; font-size: large;">Your dreams can come true too!</span></p>
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		<title>Chronic Lyme Disease and CCSVI</title>
		<link>http://www.lymediseaseresource.com/wordpress/chronic-lyme-disease-and-ccsvi/</link>
		<comments>http://www.lymediseaseresource.com/wordpress/chronic-lyme-disease-and-ccsvi/#comments</comments>
		<pubDate>Wed, 17 Nov 2010 14:47:50 +0000</pubDate>
		<dc:creator>Jenna Smith</dc:creator>
				<category><![CDATA[Chronic Lyme Disease]]></category>
		<category><![CDATA[Lyme News]]></category>
		<category><![CDATA[Neurological Lyme disease]]></category>
		<category><![CDATA[Personal stories]]></category>
		<category><![CDATA[Research and Development]]></category>

		<guid isPermaLink="false">http://www.lymediseaseresource.com/wordpress/?p=2045</guid>
		<description><![CDATA[The discovery, and more importantly the surgical repair for CCSVI, has miraculous application to MS, but also to other diseases that has a vascular aspect that is a significant factor in the neurological component of the disease, such as neurological Lyme disease.]]></description>
			<content:encoded><![CDATA[<a href="http://www.lymediseaseresource.com/wordpress/chronic-lyme-disease-and-ccsvi/" title="Chronic Lyme Disease and CCSVI"><img src="http://www.lymediseaseresource.com/wordpress/wp-content/uploads/2010/11/CCSVI.jpg" width="225" height="225" alt="Chronic Lyme Disease and CCSVI" style="float:left;padding:0 10px 10px 0;" ></a><p id="top" /><span style="font-size: medium;"><span style="font-family: helvetica;">Chronic Cerebrospinal Venous Insufficiency (CCSVI) is a chronic condition in which blood from the brain has difficulty returning to the heart.                        It is caused by a narrowing in neck veins (and potentially others as well) that drain the central                        nervous system. </span></span></p>
<p><span style="font-size: medium;"><span style="font-family: helvetica;">In some cases, there is a development of alternate veins in an attempt to                        facilitate additional drainage.  The research suggests that because these compensatory blood                       vessels do not have the same wall integrity as larger veins, they leak cellular waste into the                        adjacent tissue, resulting in an accumulation of toxins. </span></span></p>
<p><span id="more-2045"></span></p>
<p><span style="font-size: medium;"><span style="font-family: helvetica;">The discovery, and more importantly the surgical repair for CCSVI, has miraculous application to MS, but also to other diseases that has a vascular                        aspect that is a significant factor in the neurological component of the disease, such as neurological Lyme disease.<br />
</span></span></p>
<p><span style="font-size: medium;"><span style="font-family: helvetica;">CCSVI and its treatment were pioneered by researcher,                         former vascular surgeon and professor Dr. Paulo Zamboni in Italy, whose wife suffered with MS. It is thanks to Dr. Zamboni&#8217;s tireless work that there are now hundreds of previously disabled MS victims who are now able to function and live their lives fully.</span></span></p>
<p><span style="font-size: medium;"><span style="font-family: helvetica;">The success of this treatment has slowly made itself known to other diseases that could benefit from the same application. Due to the huge, but unknowable number of misdiagnosed MS patients who are actually suffering from Lyme disease, there is an exciting question about the possibility of the CCSVI treatment helping victims of neurological Lyme disease with some of the most disabling symptoms such as &#8220;Lyme Fog&#8221;, light sensitivity, sound sensitivity,difficulty remembering words, thoughts, speech, how to write, how to walk, emotional disturbances and unbalance, and/or as Thane Fredrickson calls it, &#8220;mental fatigue.&#8221;</span></span></p>
<p><span style="font-size: medium;"><span style="font-family: helvetica;">Thane&#8217;s doctor considered CCSVI as a possibility in his condition and after appropriate tests verified his condition, Thane had surgery which significantly reduced the symptoms he suffered with his neurological &#8220;mental fatigue.&#8221;</span></span></p>
<p><span style="font-size: medium;"><span style="font-family: helvetica;">Although Thane is the first to admit that he still battles the Lyme disease, those of us who struggle each day with Thane know that a large part of victory is being able to function like a normal person, and that means eliminating, or at the very least reducing, the debilitating symptoms of chronic neurological Lyme disease.</span></span></p>
<p><span style="font-size: medium;"><span style="font-family: helvetica;">It will be exciting to see if his surgery continues to give him relief.</span></span></p>
<p><span style="font-size: medium;"><span style="font-family: helvetica;"><a title="CCSVI treating neuro-Lyme symptoms?" href="http://www.youtube.com/watch?v=Ps3---IJP_4" target="_blank">Watch as Thane tells his story of the discovery and ultimate treatment of CCSVI on YouTube here</a>.</span></span></p>
<p><span style="font-size: medium;"><span style="font-family: helvetica;"><a title="CCSVI treating neuro-Lyme symptoms?" href="http://www.youtube.com/watch?v=Ps3---IJP_4" target="_blank"><br />
</a></span></span></p>
<p><span style="font-size: medium;"><span style="font-family: helvetica;"><br />
</span></span></p>
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		<title>Another Epidemic: Bartonella and the Hideous Complications With Chronic Lyme Disease.</title>
		<link>http://www.lymediseaseresource.com/wordpress/another-epidemic-bartonella-and-the-hideous-complications-with-chronic-lyme-disease/</link>
		<comments>http://www.lymediseaseresource.com/wordpress/another-epidemic-bartonella-and-the-hideous-complications-with-chronic-lyme-disease/#comments</comments>
		<pubDate>Tue, 12 Oct 2010 18:32:37 +0000</pubDate>
		<dc:creator>Jenna Smith</dc:creator>
				<category><![CDATA[Chronic Lyme Disease]]></category>
		<category><![CDATA[Co-infections]]></category>
		<category><![CDATA[Coping with Lyme Disease]]></category>
		<category><![CDATA[Neurological Lyme disease]]></category>
		<category><![CDATA[Research and Development]]></category>
		<category><![CDATA[Symptoms]]></category>

		<guid isPermaLink="false">http://www.lymediseaseresource.com/wordpress/?p=1962</guid>
		<description><![CDATA[What has any intelligent mind shaking in their figurative boots is that he keeps finding deadly new human forms every other second.  Other researchers and practitioners will have to begin to pay attention not only because of his brilliant article, but his innovative way to isolate these deadly new forms.]]></description>
			<content:encoded><![CDATA[<a href="http://www.lymediseaseresource.com/wordpress/another-epidemic-bartonella-and-the-hideous-complications-with-chronic-lyme-disease/" title="Another Epidemic: Bartonella and the Hideous Complications With Chronic Lyme Disease."><img src="http://www.lymediseaseresource.com/wordpress/wp-content/uploads/2010/10/Dr-Schaller1.jpg" width="68" height="104" alt="Another Epidemic: Bartonella and the Hideous Complications With Chronic Lyme Disease." style="float:left;padding:0 10px 10px 0;" ></a><p id="top" /><span style="font-size: large;">If you are not responding to Lyme treatment, chances are, you are infected with another tick-borne disease.  The more research that is applied to this aspect of Lyme treatment, the more types of Bartonella that are being discovered, and the amazing symbiotic nature these diseases share.</span></p>
<p><span style="font-size: large;">As Dr. James Schaller recently wrote to me (visit his website for many articles and peer-reviewed studies at personalconsult.com) that the top Bartonella veterinary researcher (among about the top three,)  just published things that he had posted 5 years ago, and wisely discusses the increasing need for Bartonella&#8211;literate physicians to talk with veterinary thinkers/researchers.</span></p>
<p><span id="more-1962"></span></p>
<p><em><strong>FOUR QUOTES OF INTEREST:</strong></em></p>
<p><em><strong>&#8230;antibody testing for Bartonella species is proving to be very insensitive.</strong></em></p>
<p><em><strong>The genus Bartonella is also unusual because it appears that no other infectious agent is transmitted by more vectors.</strong></em></p>
<p><em><strong>&#8230;patient response to treatment is frequently incomplete.</strong></em></p>
<p><em><strong>&#8230;clearly  some of us now are much more concerned about the  genus Bartonella than  anyone is at the National Institutues of Health  (NIH) or Centers for  Disease Control and Prevention (CDC).</strong></em></p>
<p><span style="font-size: large;">The veterinarian&#8217;s article follows:<br />
</span></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;"><strong>&#8220;Bartonellosis: An emerging and potentially hidden epidemic?&#8221;</strong></span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: small;">By Edward B. Breitschwerdt, DVM, DACVIM</span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;">Bartonella species, their animal hosts, potential vectors, and  sequelae of infection are being identified at a snowballing rate. A new  diagnostic test may help DVMs and MDs come together to better understand  these infections in their patients.</span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;">Veterinarians and physicians should talk to each other more  frequently than we have in the past. Of all known organisms, 61% are  zoonotic,1,2 and of the emerging pathogens, the vast majority are  zoonotic organisms&#8230; In recent years, the genus Bartonella has been the  major focus of our vector-borne research efforts.</span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;"><strong>BARTONELLA SPECIES COMPLEXITIES</strong></span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;">The organism that causes cat scratch disease in people was identified  as a Bartonella species in 1992. As researchers have continued to study  these bacteria, we&#8217;ve learned that the intraerythrocytic component of  the infection with a Bartonella species has been somewhat  overemphasized&#8230; Bartonella species are endotheliotropic bacteria that  use a specialized invasion process to enter endothelial cells and can  move about the body by infecting macrophages, with localization in a  variety of tissues&#8230;3</span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;">Researchers have learned that Bartonella species are the first  bacteria identified to have an ability to invade CD34+ progenitor cells  in bone marrow.5 This may be why we find Bartonella organisms in cats in  only a low percentage (3%) of their erythrocytes.</span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;">The genus Bartonella is also unusual because it appears that no other  infectious agent is transmitted by more vectors. We now know that sand  flies, human body lice, cat fleas, rodent fleas, and probably many other  flea species are capable of transmitting certain Bartonella species.  And cattle, deer, elk, and sheep all have their own Bartonella species  that appear to be transmitted by biting flies or keds (wingless  flies)&#8230;6</span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;"><strong>AN UNDER-RECOGNIZED ZOONOSIS</strong></span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;">In my opinion, physicians and veterinarians need to come together  regarding bartonellosis, because it appears to be an important and  under-recognized zoonosis&#8230; diagnostic test sensitivity for documenting  infection with this genus of bacteria is extremely poor, and based upon  recent experience in our laboratory, patient response to treatment is  frequently incomplete.</span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;">&#8230;what&#8217;s important for physicians and veterinarians to recognize is  that some of these Bartonella species are found in cats, dogs, rats,  ground squirrels, and rabbits. In 1992, two Bartonella species were  known to exist, and in 2009, over 26 named or candidatus species exist.</span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;"><strong>ANIMAL RESERVOIR HOSTS</strong></span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;">Bartonella species are present in a multitude of animal species. One  of the most recently identified Bartonella species, Bartonella  australis, was found in kangaroos.13 Unexpectedly, 82% of beef cattle in  North Carolina have Bartonella bovis in their blood.14 My laboratory  can isolate a Bartonella species from one or two out of three feral cats  in North Carolina,15 and other laboratories around the world have  documented similar levels of bacteremia in flea-infested cats.</span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;">Another important point for physicians and veterinarians to consider  is that many of their patients and clients have pocket pets, some of  which tend to scratch and bite. Unfortunately, numerous Bartonella  species have been identified in the blood of various rodent species. For  example, the overall prevalence was 26% in the population of wild and  captive animals brought to Japan to be sold as pocket pets.16 The human  medical literature in the United States reveals case reports of  previously healthy people with no evidence of louse exposure and a  history of cat exposure who presented to their physicians for evaluation  of lymphadenopathy or seizures and were found to be infected with  Bartonella quintana.17 More recently, our laboratory isolated B.  quintana from cats and from a woman who was bitten by one of those  cats.17</span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;">&#8230;In reviewing the human literature, as it relates to B. quintana,  it told me, as a veterinary internist, what I should be looking for in  my canine patients if I suspect that this organism is causing disease.  And vice versa: I would suggest that physicians review data and  observations that veterinarians are generating in regard to this genus  of bacteria, because clearly some of us now are much more concerned  about the genus Bartonella than anyone is at the National Institutues of  Health (NIH) or Centers for Disease Control and Prevention (CDC).</span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;"><strong>SIMILARITIES OF DISEASE EXPRESSION IN PEOPLE AND ANIMALS</strong></span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;">Bartonella species can induce a number of what I think are fairly well established pathologies in either dogs or people.18</span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;">&#8230;So we&#8217;re seeing that what&#8217;s occurring in people is also occurring  in dogs—for example, about 80% of people and about 80% of dogs have  endocarditis selectively involving the aortic valve. And based on the  veterinary literature, physicians may want to put bartonellosis on their  differential lists for children with unexplained epistaxis.19,22,23</span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;"><strong>BETTER DETECTION OF BARTONELLA SPECIES INFECTIONS</strong></span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;">After the first isolation of B. vinsonii ssp. berkhoffii, we had  difficulty isolating Bartonella species in other dogs by using culture  or by detecting Bartonella DNA in patient samples by PCR testing, even  though we could detect antibodies by using an immunofluorescent antibody  assay. In our laboratory, we had discussed that these bacteria seem to  be happier in insects than they do in dogs, so we decided to develop an  optimized insect cell culture media to enhance the growth of Bartonella  species.24,25 The insect cell culture media—Bartonella alpha  Proteobacteria Growth Medium, or BAPGM (Galaxy Diagnostics,  www.galaxydx.com)—combined with PCR testing now allows us to grow and  detect these bacteria in animals and immunocompetent people better than  any other diagnostic test currently available.26-28</span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;">My laboratory has found that 50% of dogs and people infected with B.  henselae or B. vinsonii subsp. berkhoffii do not have detectable  antibodies to any of the six different Bartonella species antigens used  in our testing.18,26,27 So antibody testing for Bartonella species is  proving to be very insensitive.</span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;"><strong>INITIAL BAPGM RESULTS AND POTENTIAL SEQUELAE OF BARTONELLA SPECIES INFECTION</strong></span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;">Using BAPGM, our laboratory has recently started testing people &#8230;.[  with Duke] 14 of 42 people had positive Bartonella species cultures and  several had Bartonella species coinfections.26 Using a survey  instrument that we developed, this group of people with occupational  animal contact and vector exposure described having headaches, insomnia,  memory loss, muscle pain, and joint pain.26 Similar to our findings,  physicians in Israel have generated a nice body of evidence regarding  the long-term follow up of patients with cat scratch disease 29-31 and  have shown that a subset of those patients later develop chronic  arthritis, chronic myalgia, and chronic musculoskeletal pain as  components of their illness.</span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;">We now know that some people and some dogs can be coinfected with  more than one Bartonella species, as is the case in cats that may be  simultaneously infected with three hemotropic Mycoplasma species.32 It  was the use of BAPGM that allowed us to culture B. quintana from a woman  who had been bitten by a feral cat (although we had expected to culture  B. henselae or Bartonella clarridgeiae instead). Months later, we used  the BAPGM enrichment approach to culture B. quintana from the feral cat  that had bitten her and another feral cat that lived on her property.17  We have also used the BAPGM platform to obtain the first DNA evidence of  human infection with candidatus Bartonella melophagi,28 and CDC  investigators used this approach to make the first isolates of  Bartonella tamiae from febrile human patients.33</span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;"><strong>MY FATHER&#8217;S ILLNESS AND BARTONELLA SPECIES</strong></span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;">About two years ago, my 86-year-old father, who lived in a rural farm  community and had developed gradual, progressive joint pain&#8230; He  subsequently developed memory loss that was thought to be possible  Alzheimer&#8217;s disease. He then fell twice a few weeks apart, and a third  time he fell, his hip fractured. He had many postoperative  complications, and during his stay in a rehabilitation hospital he  developed seizures.</span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;">At this point I became intimately involved&#8230; We ultimately  identified what appears to be a new Bartonella species, most closely  related to &#8220;Candidatus Bartonella volans,&#8221; in his blood, as well as B.  henselae and B. vinsonii ssp. berkhoffii.40</span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;"><strong>BARTONELLA SPECIES INFECTION AND ONE MEDICINE</strong></span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;">There are several more examples in the literature that describe  people with unexplained and chronic illnesses, who are identified as  having positive Bartonella species test results. What I have described  today doesn&#8217;t prove causation of illness, but I think we have  justification to worry about disease causation. Bartonella species  infection is truly a problem in comparative medicine and a place where  One Medicine applies. Veterinarians and physicians need to work closely  to find solutions for the benefit of our respective patients. Although  we still have much to learn about these bacteria, we now have a better  way of detecting them in patient samples; therefore, we need to find out  what they&#8217;re doing in our patients and how often they&#8217;re doing it.</span></em></p>
<p style="padding-left: 30px;"><em><span style="font-size: large;">Source: <a href="http://veterinarymedicine.dvm360.com/vetmed/Parasitology+Center/Bartonellosis-An-emerging-and-potentially-hidden-e/ArticleStandard/Article/detail/660519">http://veterinarymedicine.dvm360.com</a></span></em></p>
<p><span style="font-size: large;">Dr. Schaller believes that Dr. Breitschwerdt&#8217;s recent findings in many areas are revelutionary but will sadly be ignored for 3-10 years.</span></p>
<p><span style="font-size: large;">What is causing every intelligent mind, shaking in their figurative boots, is that this veterinarian/researcher keeps finding deadly new human forms &#8211; it seems as though every other second.  Other researchers and practitioners will have to begin to pay attention not only because of his brilliant article, but his innovative way to isolate these deadly new forms, and the sheer number of deadly forms that are being identified.<br />
</span></p>
<p><span style="font-size: large;"> </span></p>
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		<title>Wierd Skin With Chronic Lyme Disease? You May Have ACA.</title>
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		<pubDate>Fri, 30 Jul 2010 16:49:32 +0000</pubDate>
		<dc:creator>Jenna Smith</dc:creator>
				<category><![CDATA[Chronic Lyme Disease]]></category>
		<category><![CDATA[Lyme News]]></category>
		<category><![CDATA[Neurological Lyme disease]]></category>
		<category><![CDATA[Symptoms]]></category>

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		<description><![CDATA[Acrodermatitis chronica atrophicans is a skin condition that takes a  progressive course that leads to atrophy of the skin in a variety of ways but sharing certain common characteristics.

Not surprisingly, involvement of the peripheral nervous system is frequently observed as a part of ACA (numbness, tingling, pain...) 

As we know, clinical manifestations of Lyme borreliosis are almost unlimited. They can affect the skin, nervous system, muscles, joints eyes, ears, any organ including the heart.  With ACA, the skin becomes papery thin and almost shiny and transparent so that the blood vessels, veins, arteries and tissue can be seen through the skin in various degrees which give the skin a pinkish/bluish color.]]></description>
			<content:encoded><![CDATA[<a href="http://www.lymediseaseresource.com/wordpress/wierd-skin-with-chronic-lyme-disease-you-may-have-aca/" title="Wierd Skin With Chronic Lyme Disease? You May Have ACA."><img src="http://www.lymediseaseresource.com/wordpress/wp-content/uploads/2010/07/ACA.jpg" width="550" height="360" alt="Wierd Skin With Chronic Lyme Disease? You May Have ACA." style="float:left;padding:0 10px 10px 0;" ></a><p id="top" /><span style="font-size: large;"><span style="font-family: book antiqua,palatino;">What is ACA?</span></span></p>
<p><span style="font-size: large;"><span style="font-family: book antiqua,palatino;">It is Acrodermatitis Chronica Atrophicans, a skin condition that frequently accompanies late stage Lyme borrelliosis (afzelii) but almost exclusively by those of  European heritage.</span></span></p>
<p><span id="more-1833"></span></p>
<p><span style="font-size: large;"><span style="font-family: book antiqua,palatino;">Originally discovered and documented by Dr. Buchwald in 1883, it was not until 1902 when Dr&#8217;s Herxheimer and Hartmann began to study the phenomena in earnest that clear evidence began to mount.  (The full name of the disease now carries the name of Dr. Herxheimer  in most references.)</span></span></p>
<p><span style="font-size: large;"><span style="font-family: book antiqua,palatino;">Now it is estimated that close to 10% of all Europeans with Lyme disease  have ACA and in fact it is the most common late and chronic manifestation of  European Lyme disease.</span></span></p>
<p><span style="font-size: large;"><span style="font-family: book antiqua,palatino;">However, given the fact that most doctors in North America do not believe in chronic Lyme disease, it is not surprising that dermotologists would not be trained to recognize ACA, and even Lyme literate doctors are sadly lacking any significant training about ACA.</span></span></p>
<p><span style="font-size: large;"><span style="font-family: book antiqua,palatino;">Acrodermatitis chronica atrophicans is a skin condition that takes a  progressive course that leads to atrophy of the skin in a variety of ways but sharing certain common characteristics.</span></span></p>
<p><span style="font-size: large;"><span style="font-family: book antiqua,palatino;">Not surprisingly, involvement of the peripheral nervous system is frequently observed as a part of ACA (numbness, tingling, pain&#8230;) </span></span></p>
<p><span style="font-size: large;"><span style="font-family: book antiqua,palatino;">As we know, clinical manifestations of Lyme borreliosis are almost unlimited. They can affect the skin, nervous system, muscles, joints eyes, ears, any organ including the heart.  With ACA, the skin becomes papery thin and almost shiny and transparent so that the blood vessels, veins, arteries and tissue can be seen through the skin in various degrees which give the skin a pinkish/bluish color.</span></span></p>
<p><span style="font-size: large;"><span style="font-family: book antiqua,palatino;">ACA is most commonly found on the hands and feet but can be found most anywhere on the body.  Unfortunately, if you think you have it, there isn&#8217;t a very good chance of diagnosis. </span></span></p>
<p><span style="font-size: large;"><span style="font-family: book antiqua,palatino;">Doctors absolutely despise patients who come into their office armed with information from the internet.  However, you may have a chance if you come armed with the following article from WebMD: http://emedicine.medscape.com/article/1051695-overview.  <a title="ACA Herxheimer pictures" href="http://www.dermis.net/dermisroot/en/35111/diagnose.htm" target="_blank">This site also has some remarkable pictures here.</a></span></span></p>
<p><span style="font-size: large;"><span style="font-family: book antiqua,palatino;">For your own understanding of ACA, a picture is worth a thousand words.  There is a remarkable collection of pictures from Dermis.net (the lead picture for this post is from their site), make sure to click on your flag of nationality to read the text in the correct language: DERMIS.net.</span></span></p>
<p><span style="font-size: large;"><span style="font-family: book antiqua,palatino;">Finally, there is a glaring and  amazing point I would like to make -  above and beyond the possible diagnosis that many may have been suffering with for years without a clue of its connection to chronic Lyme disease.   Perhaps you will have jumped ahead to the obvious question this post raises by the accepted and even honored  research byDr. Hartmann and Dr. Herxheimer over one hundred years ago.</span></span></p>
<p><span style="font-size: large;"><span style="font-family: book antiqua,palatino;">Why and how can it be that the respected doctors of the day believed witout a doubt in chronic Lyme disease and studied symptoms and treatment of such while our &#8220;advanced doctors have disregarded over a century of research and documentation to cling to their platform of &#8220;there is no such thing as chronic Lyme disease.&#8221;</span></span></p>
<p><span style="font-size: large;"><span style="font-family: book antiqua,palatino;">The next time you are challenged about chronic Lyme disease, you may want to bring up this ignored fact &#8211; that chronic Lyme disease is not debated in Europe.  Do we even need to ask why?<br />
</span></span></p>
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		<title>Why Lyme Treatments Fail: Part II</title>
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		<pubDate>Fri, 23 Jul 2010 18:12:25 +0000</pubDate>
		<dc:creator>Dr. James Schaller</dc:creator>
				<category><![CDATA[Chronic Lyme Disease]]></category>
		<category><![CDATA[Co-infections]]></category>
		<category><![CDATA[Coping with Lyme Disease]]></category>
		<category><![CDATA[Great Imitator]]></category>
		<category><![CDATA[Neurological Lyme disease]]></category>

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		<description><![CDATA[Advice from Web sites and chat rooms usually does not apply to you. No two people are ever to be treated the same. To seek advice on the Internet is a concern of most physicians and healers. Sometimes you can find mature balanced support from those who are healthy, but not new advanced and solid credible information for your medical care. Many leaders in tick-infection medicine report they are quoted incorrectly, and that the information is often wrong, sometimes dangerous and wastes time and money.]]></description>
			<content:encoded><![CDATA[<a href="http://www.lymediseaseresource.com/wordpress/why-lyme-treatments-fail-part-ii/" title="Why Lyme Treatments Fail: Part II"><img src="http://www.lymediseaseresource.com/wordpress/wp-content/uploads/2010/07/schaller1.jpg" width="74" height="75" alt="Why Lyme Treatments Fail: Part II" style="float:left;padding:0 10px 10px 0;" ></a><p id="top" /><span style="font-size: large;">Our average patient has been to 10-50 smart, sincere and concerned physicians, but they have not returned to their baseline level of functioning. We also inherit many treatment failures, which allow us to see by indirect and direct diverse types of testing what worked or failed before they came to us.</span></p>
<ol>
<li><span style="font-size: large;"><strong>The notion of &#8220;Lyme Disease&#8221; is a 1990&#8242;s notion.</strong> If a clinician uses advanced, direct and highly important indirect testing to look for the increasing number of infections carried by deer ticks, it is clear that organisms besides Lyme are present routinely in deer ticks. The idea that deer ticks only carry one infection is a disaster. Deer ticks carry multiple bacteria, parasites, and viruses. For example, Bartonella is far more common than Lyme disease. </span></li>
<li><span style="font-size: large;"><strong>There is no correct starting dose for virtually any medication.</strong> I was asked years ago by two top editors to write an article on &#8220;sensitive and careful dosing in clinical practice.&#8221; They noticed within my various papers we were pointing out the need for tailored dosing instead of chemical battery. For example, all medications should begin with a first dose that is below a full tablet or capsule, because sometimes it is 20x more effective than normal. Always start with a fraction of the lowest dose pill and this can be increased over a mere 24 hours.Further, one never should increase or start two treatments at once. This is chaos, and causes confusion over the reason for a side effect or a good benefit. Also, if a patient develops uncomfortable feelings, either from the die off of an organism or from medication side effects, they become demoralized, and the cause is unclear with many treatments. Simply, no two people have even been treated by me the same from start to finish, and this is why a cure book on all major tick-borne infections cannot be published.M
<p><span id="more-1820"></span></p>
<p></span></li>
<li><span style="font-size: large;"><strong>Is the new explosion of so-called &#8220;Lyme Literate&#8221; or LL-MD experts really trained to do more than basic screening?</strong> Generally when I am trying to pursue an expertise in any aspect of tick and flea borne infections, I spend years engaged in full-time reading on the topic and try to talk with the leaders around the world who know the most on the topic. Unfortunately, as of 2010, &#8220;Lyme Literate&#8221; really means that you have gone to a couple conferences, learn the basics from the last five to ten years, and some also shadow one or two physicians for days to a week while they see patients—both are good experiences. Both are a good starting place, but does not make one &#8220;tick-infection literate&#8221; in any serious manner. Finding someone that knows how to use a wide range of labs which will check for a direct and indirect presence of the infections from tick, who has read thousands of articles, and consults with physicians and scientists regularly for success and failures along with finding new solutions is extremely rare in the world. Yet we do need every screening healer we can get!</span></li>
<li><span style="font-size: large;"><strong>Routine speed IV treatment of most new patients is an error.</strong> Some individuals treating Lyme disease do a fairly rapid assessment and quickly put all of their patients on an I.V. like they are running a mill. It is almost as if they say &#8220;It is nice to meet you, let&#8217;s get you started on your I.V. quickly.&#8221; There are many problems with this approach and far too many to discuss here, but the first problem is that the volume of spirochetes that can die with an invasive I.V. could be too many, due to the release of Lyme debris and/or Lyme biotoxins, such as Botox I can increase inflammation. It also ignores the fact that Bartonella, with increasing numbers of human species found yearly suppresses immunity. IV treatment will never be as effective as it could be when used alone without the use of new 2010 selected Bartonella treatments that are clearly proven to work when used alone or in combination. Meaning, IV and all other types of Lyme treatment work profoundly better if one or more new Bartonella treatments are used. We find new such treatments every few seasons. As previously stated in my first Townsend article on the Reasons for Lyme Treatment Failure, the most common treatments for Bartonella come from a mere 25 basic Bartonella treatment articles or infection handbooks. They lead to relapse even when they appear to work for a variable periods of time.<strong>I.V. gall bladder emergencies are too frequent.</strong> One reason some insurance companies do not want to do prolonged I.V. treatment is because of gallbladder emergencies. I am fairly stunned that the only thing given to protect the gallbladder and liver with the use of I.V. medications is Actigall, and some do not prescribe anything when giving I.V. treatment. Many have little knowledge of advanced ways to protect the liver, and yet use liver stressing treatments. For example, any dose of azithromycin, Mepron, Malarone, Diflucan or IV or injected muscle antibiotics can stress the liver, and low doses that do not stress the liver may lead to residual infections.
<p></span></li>
<li><span style="font-size: large;"><strong>Following the guidelines of practitioners with famous names, university titles or organization leadership positions is an error in judgment.</strong> If you are famous or have a title or &#8220;chair&#8221; or are high in an organization, the more brutally busy the healer can be, sometimes working 12hours virtually every day. So this healer can never read high volumes of new material published this season. Therefore, no organization, government agency, web site or person has the definitive, updated information on tick-infection medicine in the USA or the world. No single organization or group of organizations can provide people with authoritative instruction in how to treat an individual profoundly unique patient.</span></li>
<li><span style="font-size: large;"><strong>All guidelines for medicine are flawed and outdated within one month of publication.</strong> The explosion of new published material and non-published discoveries by hundreds of international healers make guidelines mere suggestions.Hundreds of thousands of articles are published every few months. In our practice, we have only published five percent of what we have found. Similarly, many fellow researchers I know also have limited time to publish their discoveries.
<p>Further, the great philosopher of science, Kuhn, has shown that there are so many variables that impact all scientists that the notion that any group of physicians can give unbiased pure scientific recommendations is impossible. Obvious guideline errors are present in all current tick and flea-borne infection guidelines.</p>
<p>Different guidelines have outrageously specific treatment plans which are not even appropriate for cars, which in this current age have different types of oil and different amounts of recommended oil. The human body when it is infected with a cluster of tick infections is a billion times more complex than any automobile. Some guidelines use highly dated doses from studies that are fifteen years old. Other guidelines do not even mention infections such as persistent human atypical Bartonella, which has vastly more vectors than Lyme disease, or Babesia and based on years of full-time reading, suppresses the immune system in highly specific ways that some guideline agencies and groups seem to totally ignore.</p>
<p></span></li>
<li><span style="font-size: large;"><strong>A <em>complete lack</em> of meaningful knowledge of the immense magnitude and danger of Bartonella.</strong> This stealth bacteria has over ten different ways to infect you, and not merely a few types of ticks. It kills and harms every organ and decreases fevers and immune defenses, and does not fully respond to the top ten &#8220;published&#8221; traditional or alternative treatments. In one case report it appears that Bartonella turned off all the antibodies to five tick-borne infections, including its own antibody titer levels. In this medical family they self treated with a new Bartonella agent and this resulted in an explosion of western blot Lyme disease bands and all major deer tick infection antibody titers suddenly rose to profound levels because the immune system was no longer suppressed against them by Bartonella. Therefore, merely by the use of this newly uncovered Bartonella treatment, all of these patients negative labs at a large national lab, turned positive after being repeatedly negative.</span></li>
<li><span style="font-size: large;"><strong>The use of fetish, &#8220;favorite&#8221; medications, herbs or new &#8220;discovered&#8221; causes of prolonged illness.</strong> Of course, any healer studying traditional or progressive medications is serving all. My appeal in this criticism is not to reject the fine work done by at least two hundred people internationally on traditional antibiotics, protozoa medications, anti-virals, herbs used for a wide range of infections, essential oils, and at least fifty progressive alternative treatments.However, like the experience of falling in love, when one love becomes all you think about, this is not optimal medicine when you fall in love with a few treatments.
<p>For example, minocycline, tetracycline, clarithromycin, rifampin, azithromycin, HBOT, Rife, special saunas, ozone, IV nutrients to &#8220;boost immunity,&#8221; chelation, confused detox formulas, Artemisia derivatives, essential oil combinations, IV medications, various weak alcohol based herbal programs, various energy machines, and a hundred other options found in chat rooms and Lyme disease &#8220;information&#8221; sites, are not meant to be the sole or primary style of all patient treatment. Carpenters use select tools at select times for select needs. Nevertheless, with my thanks for the above passion of those that promote these and hundreds of others of treatments, they have to pass blind rigorous simple direct and indirect testing to show they work, and very few know how to do such testing. I feel it is an error to only use an antibiotic which has limited mechanisms for killing bacteria.</p>
<p>I have published the most current textbook on Artemisia derivatives, including Artemisinin (qinghaosu) and many other toxic forms that should be avoided. And yet, despite being the most recent practical clinical book on the topic, based on a year of full-time study with Chinese consultants and WHO consultants, it has been ignored by some who have little herbal training or reading. Why? The final approach that is worthy of mention is the &#8220;I only do natural treatments&#8221; approach. Unfortunately when I interview some of these individuals many of whom are quite smart and well read, they are aware of allopathic medication side effects, but not the toxic components of the herbs they are using. Individuals using essential oils, including those that prescribe them, usually have never read a book on the various toxicities and safety concerns of essential oils. Some of them have excellent effects and others can provide help, but also have side effect risks and others should never be used internally at all in anything more than a minimal dose.</p>
<p></span></li>
<li><span style="font-size: large;"><strong>The &#8220;new&#8221; yearly or bi-yearly cause of Lyme disease treatment failures is possibly wrong.</strong> I was appreciative that a few brilliant researchers found that the Bb Lyme spirochete had a biofilm in recent years&#8211;useful. But I was actually stunned this was felt to be new, since spirochetes routinely have biofilms, and dental spirochetes have immense research going back many years on biofilm promoting dental disease. </span><span style="font-size: large;">A review of the major world literature shows about 25 treatment options to handle biofilms. No one has offered more than a small number of basic options to beat this problem. Perhaps it increases treatment relapses and failures, but that is not what I usually see.</span></li>
<li><span style="font-size: large;"><strong>Rejection of top thought leaders because of cost.</strong> When I think back over the hundreds of physician&#8217;s, PhD&#8217;s, herbal experts, nurses, alternative healing practitioners and even poorly educated addicts who I treated decades ago, it is clear to me, that while none of them was perfect, all have helped me immeasurably. Currently at least 50 physicians are defamed for their fees when treating tick borne infections which can end their entire career. The same applies to bonding with a healer. I often seek the wisdom of people that may be annoying, irritable, tired, simplistic, insulting, or confusing. But the fact of the matter is virtually every healer I have known, regardless of specialty, philosophy and ideology, has taught me a lesson that helps patients. I have literally seen patients decide to go with physicians who have virtually no knowledge of tick-borne disease, because they were &#8220;caring and friendly.&#8221;Further some want a &#8220;local&#8221; physician, as if geography is the same as expertise and knowledge.
<p>The appeal of many smart patients is to tell you this: it takes many appointments to get better, and there is no better use of any income than on your health and the health of your loved ones, instead of wasting it on healer after healer who is sincere, but does not have a complete passion to master these illnesses, and a good track record of improving lives, including very ill patients. A mere few sessions usually will not cure all your tick-borne infections.</p>
<p></span></li>
<li><span style="font-size: large;"><strong>The use of herbal treatments without solid follow-up by direct and indirect means.</strong> Currently, one finds herbs that are mixed in grain alcohol with 1/50th the potency of a capsule, that are supposedly cures to tick-borne disease. In our examination of these inherited treatment failures, we have not found these low potency alcohol based herbs cure. Others offer high priced herbs and &#8220;know&#8221; they are successful, and often recommend one size for all adults living on the earth. Often their understanding of advanced herbal processing, standardization and the multiple chemicals in any herb is limited. In any event, in our outcome studies we have found that these herbs at best may limit body infection volume slightly. It is profoundly important to use effective herbs with a tailored specialized dosage for each individual or you are merely experiencing &#8220;mill medicine.&#8221; If you are self treating with herbs or by a healer, if they promote &#8220;one size fits all&#8221; you are accepting health care inferior to dog medicine. </span></li>
<li><span style="font-size: large;"><strong>Advice from Web sites and chat rooms usually does not apply to you.</strong> No two people are ever to be treated the same. To seek advice on the Internet is a concern of most physicians and healers. Sometimes you can find mature balanced support from those who are healthy, but not new advanced and solid credible information for your medical care. Many leaders in tick-infection medicine report they are quoted incorrectly, and that the information is often wrong, sometimes dangerous and wastes time and money.</span></li>
</ol>
<p>James Schaller, MD has been elected by his physician peers a &#8220;Best Doctor in America.&#8221;</p>
<p>He has published more books on tick infections than probably any physician in history. Perhaps this is why he treats patients from all over the world. He is the author of 26 books and 27 papers published in highly respected peer-reviewed medical journals on topics covering ten areas of medicine.</p>
<p>He is the author of:</p>
<ul>
<li>Babesia Update 2009: A Cause of Excess Weight, Migraines and Fatigue? A Common Reason for Failed Lyme Disease Treatment</li>
<li>The Health Care Professional&#8217;s Guide to the Treatment and Diagnosis of Human Babesiosis: An Extensive Review of New Human Babesia Species and Advanced Treatments</li>
<li>Artemisinin, Artesunate, Artemisinic Acid and Other Derivatives of Artemisia Used for Malaria, Babesia and Cancer</li>
<li>The Diagnosis, Treatment and Prevention of Bartonella: Atypical Bartonella Treatment Failures and 40 Hypothetical Physical Exam Findings; A Laboratory Guide to Human Babesia Hematology Forms.</li>
<li>Mold Illness and Mold Remediation Made Simple: Removing Mold Toxins from Bodies and Sick Buildings</li>
<li>When Traditional Medicine Fails, Your Guide to Mold Toxins</li>
<li>A.D.D., Irritability and Oppositional Disorders: Cutting Edge Solutions Sincere Therapists and Doctors Miss</li>
<li>Suboxone: Take Back Your Life From Pain Medications</li>
</ul>
<p>SEE: <strong> http://www.personalconsult.com/</strong></p>
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