Jenna’s Lyme Blog

Acrodermatitis chronica atrophicans is a skin condition that takes a progressive course that leads to atrophy of the skin in a variety of ways but sharing certain common characteristics.

Not surprisingly, involvement of the peripheral nervous system is frequently observed as a part of ACA (numbness, tingling, pain…)

As we know, clinical manifestations of Lyme borreliosis are almost unlimited. They can affect the skin, nervous system, muscles, joints eyes, ears, any organ including the heart. With ACA, the skin becomes papery thin and almost shiny and transparent so that the blood vessels, veins, arteries and tissue can be seen through the skin in various degrees which give the skin a pinkish/bluish color.

Posted on July 30th, 2010 under Chronic Lyme Disease, Lyme News, Neurological Lyme disease, Symptoms. Comments: 4

Advice from Web sites and chat rooms usually does not apply to you. No two people are ever to be treated the same. To seek advice on the Internet is a concern of most physicians and healers. Sometimes you can find mature balanced support from those who are healthy, but not new advanced and solid credible information for your medical care. Many leaders in tick-infection medicine report they are quoted incorrectly, and that the information is often wrong, sometimes dangerous and wastes time and money.

Posted on July 23rd, 2010 under Chronic Lyme Disease, Co-infections, Coping with Lyme Disease, Great Imitator, Neurological Lyme disease. Comments: 8

A group of clever researchers from Cornell have studied the anti-neural antibody reactivity in the brain of patients who have “Post Lyme Disease Syndrome” as compared to healthy people who have recovered from Lyme disease (and a control group of healthy people who have not had Lyme disease) in an effort to analyze the immune [...]

Posted on June 24th, 2010 under Chronic Lyme Disease, Discussion, Neurological Lyme disease, Research and Development. Tags: Chronic Lyme disease, Emerging research about neurological Lyme disease, Post Lyme Disease Syndrome. Comments: 1

In 2009, “Science Magazine” published a newly released paper from Whittemore Peterson Institute about the existence of XMRV, (which stands for xenotropic murine leukemia virus related virus,) which looked to be a causative agent in CFS, Fibromyalgia, Prostate Cancer and several other neuro-immune disorders.

The race was on.

All around the world there were doors opened for research scientists to apply this remarkable discovery and try to find better diagnostic tools, better treatment and of course – the great career maker – finding a cure.

Posted on May 20th, 2010 under Chronic Lyme Disease, Neurological Lyme disease, Personal stories, Research and Development. Tags: CFS/ME, Chronic Lyme disease, Fibromyalgia, XMRV. Comments: 5

Pass the jar of leeches, please. And would you please bring the incense closer? Quick shut the door – no fresh air!

Speaking for myself, as someone who has suffered year after year with painful chronic neurological Lyme disease, I must confess that there are days that I wonder if living 500 years ago in Austria, India, Tibet or Bejiing would have brought swift and painless healing (for the right price of course).

Posted on April 10th, 2010 under Chronic Lyme Disease, Coping with Lyme Disease, Discussion, Neurological Lyme disease. Tags: Chronic Lyme disease, Cure for Lyme disease, Healing Chronic Lyme disease. Comments: 1

Several years ago I admitted a patient with Lyme disease (LD) to a psychiatric unit. He was para­noid and assaulted five police officers in an episode of rage. During the hospital stay, the patient went to the river behind the hospital to watch the Fourth of July fireworks display. When the fireworks began, the patient jumped into the river. It appeared the loud noise was responsible for an acoustic startle reaction.

Posted on January 19th, 2010 under Chronic Lyme Disease, Coping with Lyme Disease, Discussion, Neurological Lyme disease. Tags: Chronic Lyme disease, Violence and Rage from Lyme disease. Comments: None

The core of the project offers a highly-sensitive “lab-on-a-chip” device built using a nanoimprinting technology to enable much faster production at minimal costs. An optical reader will also be developed to enable user-friendly readout and interpretation of results. The resulting tool can easily be adapted to a wider infectious disease market for other pleomorphic bacteria such as chronic Lyme disease and bacteria involved in other serious diseases.

Posted on October 24th, 2009 under Chronic Lyme Disease, Coping with Lyme Disease, Lyme News, Neurological Lyme disease, Research and Development. Tags: Chronic Lyme disease, diagnosis of chronic Lyme disease, fast diagnosis of Lyme disease. economical diagnosis of Lyme disease. Comments: 8

Plus – “prominent calcification of the invertebral cranial artery”. My next “event” is expected to be terminal. (oopsie) Add to that; degenerative disc disease – I am fused L4-S1 w/ fusion of L3-4 pending + C1-4. Fibromyalgia & CFS, Major arthritic changes of every joint viewed so far. Reconstructive surgery to my left shoulder and both wrists. My knees are a wreck; stay swollen to about the size of grapefruits 24/7, swelling to melon size frequently.

Posted on October 14th, 2009 under Chronic Lyme Disease, Coping with Lyme Disease, Neurological Lyme disease, Personal stories, Symptoms. Tags: Chronic Lyme disease, Struggle with chronic Lyme disease. Comments: 2

Out of the tragic and deadly AIDS epidemic; medical researchers have brought about a wave of new scientific breakthroughs which has benefited hundreds if not thousands of suffering people with related diseases due to immune dysfunction. As the search for better tools and treatments continue to advance for “AIDS”, there have been more and more [...]

Posted on October 10th, 2009 under Chronic Lyme Disease, Neurological Lyme disease, Research and Development. Tags: CFS, Chronic Lyme disease, Neuro-Lyme, prostate cancer, XMRV. Comments: 2