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Jenna’s Lyme Blog

Jenna’s Lyme Blog

News and resources for neurological Lyme disease and co-infections.

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News From Dr. Brian Fallon at Columbia University’s Lyme Clinic

News From Dr. Brian Fallon at Columbia University's Lyme Clinic

The following is taken directly from Columbia.edu.

A fascinating and potentially very important study has recently come out in the journal Science.

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Antibiotics: A Dirty Word or Miracle Cure for Chronic Lyme Disease?

Antibiotics: A Dirty Word or Miracle Cure for Chronic Lyme Disease?

Antibiotics have been hailed as the super cure in their vaulted past, but over the years, as people have begun to die and suffer terrible side effects due to over-use, and still others who become sick from even a small amount of antibiotics, there is a new wave of bad publicity towards antibiotics, rightly so when taken casually.

But for those of us with chronic Lyme disease, the risks involved with taking antibiotics - for years even- are absolutely worth it.  Many will admit to thinking that death is not a punishment compared to the hell we live with each day.

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Hyperbaric Oxygen Chambers

Hyperbaric Oxygen Chambers

Hyperbaric Oxygen Therapy (HBOT) has many scientists and researchers looking at the possibility of using oxygen, either as a stand-alone treatment or as a combination treatment to be used with combination of different antibiotics.

Dr. William Fife, a pioneer in undersea medicine first for the Air Force and now  at Texas A & M University, has published extensive research demonstrating profound improvements in Lyme disease patients treated with HBOT. These improvements include pain reduction, return of clarity of the mind, and reduction of depression.

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Violence and Lyme Disease

Violence and Lyme Disease

Early into my diagnosis, I begged my doctor to give me subscription drugs to manage the frightening rage and frustration taking over my fragile central nervous system.

In those early months I spent a lot of time reading other people’s experience with Lyme; and I remember the horror I felt reading about a woman who had been pushed around in the medical system and eventually blew up in uncontrollable frustration screaming, “I have Lyme!  I have Lyme!” and her neighbors called the police who had to physically confine her.

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Honey And Cinnamon For Chronic Lyme Disease?

Honey And Cinnamon For Chronic Lyme Disease?

When those who are friends and family watch you suffer year after year, it is only natural that they would want to help out.  Sometimes it is snake oil, and sometimes it is a little known treatment that can really make a difference.

My brother-in-law told me about cinnamon and honey over the Christmas holidays (at which time I was struggling to participate for the first time in 3 years), and I promised him I would look into it, and when I promise, I follow through even if it takes some time.

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A New Vaccine For Lyme Disease From Tick Saliva?

A New Vaccine For Lyme Disease From Tick Saliva?

Believe it or not, according to a press release in Cell & Microbe, a group of Yale scientists may have blown the door off the frustrating tangle of vaccine ideas to protect the populace from Lyme disease.  They have found a protein found in the saliva of ticks helps protect mice from developing Lyme disease.

Traditionally, vaccines have directly targeted specific pathogens. This is the first time that antibodies against a protein in the saliva of a pathogen’s transmitting agent (in this case, the tick) has been shown to confer immunity when administered protectively as a vaccine.

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More To Fear From Those Who Are Sworn By Oath To Provide “Aid”

More To Fear From Those Who Are Sworn By Oath To Provide

I hope that this blog does not read like a medical “doctor bashing” blog, it is not meant to be, in fact the “Chronic Lyme Disease Controversy” has identified some truly heroic medical doctors.  Although I firmly believe that our ultimate salvation (in terms of chronic Lyme disease) will come from the scientists who are studying the bacteria rather than the medical doctors who tend to be bound by this or that Association that governs their specialty.

However, one glaring danger that I am finally waking up to is the private and public labs who handle the actual germs and race to publish hoping for bigger and better grants through the merit of their writing.

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Who Can We Trust?

Who Can We Trust?

For most of us, medical care has been taken for granted, and the authority of licensed medical practitioners unquestioned.

When you or I go to our family doctor who correctly suspects some type of infection, the medical protocol is for the licensed doctor to consult the accepted procedures as outlined in the enormous IDSA’s (Infectious Disease Society of America), and then follow the protocol with confidence.

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New Diagnostic Test For Lyme Disease?

New Diagnostic Test For Lyme Disease?

One of the most devastating aspects of contracting Lyme disease today is the absence of a reliable test to diagnose Lyme and/or many of the co-infections that contribute to unnecessary suffering and mental anguish.

If you are bitten, the current protocol for doctors is to test the blood for antibodies using the ELISA test - which even some of the proponents of this system will admit to an 80% error rate.  Then, IF you have a positive ELISA the protocol is to take a Western Blot which is far more accurate than the ELISA in evaluating the number of antibodies but still very unreliable for those who have chronic Lyme (regardless of how many clinical manifestations are present.)

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Personal Journey Using Teasel For Chronic Lyme Disease

Personal Journey Using Teasel For Chronic Lyme Disease

Jenna, I am so happy you included this article about Teasel.  My 17 year old daughter was plagued with chronic Lyme disease and neuroborreliosis, and we made many trips to the emergency room in the last two years because of meningitis-like symptoms.

Since we live in Texas, the state with no Lyme disease…HA!, the only course of treatment had been doxycycline, which we figured out was causing severe cerebral hypertension, and it was no longer an option for Katelynn.

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