About the Author

Jenna Smith has been a competitive dressage
rider (USDF bronze and silver medalist) for the past five
years. The picture above was taken during a victory gallop
after winning 3rd place (for adult amateurs) at Prix
St. Georges in Saugerties, New York at the Region 8
Championships – 2 weeks before coming down with a
“mysterious” flu-like
illness.
Within weeks Jenna went from daily riding
workouts to spending her days bedridden in a darkened
room.
"What really frightened me was the combination
of symptoms – acute abdominal pain, body aches and chills,
itchy rash, joint pain, profound weakness, debilitating
sensitivity to light and sound, repeated migraines, dizziness,
brain fog and wild mood swings - all of which I had suffered
with over the years at different times – but
separately.
Previous doctor visits and medical tests revealed nothing, and
the symptoms always resolved themselves so I stopped going to
the doctor when something flared up. I never dreamed it was all
tied together – and I didn’t know a thing about Lyme Disease
(other than the risk to horses!)”
Luckily, a friend introduced her to a “Lymie
Old-timer” who steered her to a Lyme-literate doctor right
away. Still, it was thousands of dollars and many, many tests
later before getting positive results on a western blot and
starting aggressive oral antibiotics.
“I feel fortunate that I had a diagnosis within
3 months – it felt like 3 years because I was so sick, but
compared to so many – it was fast. I was also lucky to have a
primary care doctor who was open to working with the Lyme
specialist – otherwise the insurance company would not have
covered the mounting expenses.”
Unfortunately, the oral antibiotics didn’t seem
to work, and Jenna’s doctors ordered IV antibiotics. A CD-57
was ordered which confirmed the long-term nature of the disease
– a count of 28 after 4 months of treatment (acceptable range
is 60 – 360 but for Lyme patients a count of 200 is desired
before ending treatment), and provided a goal for IV
treatment.
“If you’ve suffered with Lyme disease, you know
how frustrating and depressing it can be – especially for
someone active like me. Food shopping, laundry and household
chores never even registered on my daily list – I just squeezed
them in between riding gardening, managing a working horse farm
and a mortgage business – now I have to plan a whole day to do
laundry and I still haven’t the strength to leave the house let
alone run errands.”
As Jenna struggled through the roller-coaster of
good days and bad days, she tried to utilize any clear days to
research as much as possible about the disease, and any
life-style and diet changes recommended for beating illness.
This website is the result of that effort.
“It was so frustrating to find a list of
suggestions, and then have to search for the web for the right
products. I found a lot of great information in a great many
places, but felt that a central resource site would help other
people – especially for those who suspect they have Lyme
disease.”
Jenna is married to her childhood sweetheart and
business partner Scott Smith. They
have six children and one grandchild, and
currently live in the western mountains of Maine. She is
also the author of the action/adventure novel,
The Goddess of Sumer
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